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Why am I always cold?

Tue, 12/20/2005 - 20:28
I am on Trileptal and Topomax. And i'm always freezing. Even when i'm warm to the touch, i'm shivering inside. I know the meds thin out the blood, but this is crazy. Is the hormonal seizures and the screwed up hormones every single month? Is it the medications? Wow. The house is warm and the blankets are on me. Help. I'm frozen. -Kelly

Comments

Re: Why am I always cold?

Submitted by Seruzies on Thu, 2009-03-19 - 01:35
Ahhh, finally made it back to Vegas! Right now it's around 10:30 PST and it's close to 70 degrees outside. I've been feeling much better now that I'm back where it's warm and no longer living where it's cold or humid all the time. The weather makes a big difference for me. I love being warm and HATE being cold. Hopefully now, I'll be able to control my seizures better and try to have some kind of life. I'm on Disability, and I'm not sure how much I'm allowed to make or even if I can work. I just know I need the money! Either way, it feels good to be warm again.

Re: Why am I always cold?

Submitted by rikk on Thu, 2009-03-19 - 10:29
hi,  this is a shot in the dark.  I have had the bone cold feeling from time to time.  the neuro thought is was cause by seizure activity close to the hypothalmus.  part of the tempature regulatory system of the body and the hormonal effect on seizure activity has the connection.  the changes in the hormones may make you more prone to have seizures in that area.  The thing i did that had the best effect, was a hot shower, and a warm bed. lots of blankets, and go to sleep for a while.  it for me was bone crushing cold, and it could be 90 degrees F.   An side note is that when i had the vns  put in the what i call "cold seizure" for the most part went away as a normal.  if it start to occur, i activate the device to increase the power and the cold is gone.  Some of the AEDs can cause the problem as a side effect. I was and still am on keppra. It was one of the things the neuro added.  when they went away he looked confused, but said it must have had something to do with the seizures.  Now for the politcal part.  the best people to indicate seizure research are people with epilepsy.  the doctors should not be saying it is not. and looking more at could it be.  Many of the people i have contact with have problems with neuros, listening to problems.  This i think is one of the main problems for misdiagnosis.  That will end the political address.  I hope the information helps.   rikk

Re: Why am I always cold?

Submitted by rikk on Thu, 2009-03-19 - 10:34
hi, again.  to connect to the cold problem i had.  I actually took my tempature, and the tempature actually dropped by 4 degrees in a period of 15 minutes.  That was one of the other points that put it more into a seizure type.  Rikk

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