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autism and now siezures?
Wed, 11/18/2009 - 02:34I emailed the website already but wanted to post too. I take care of an adult with moderate autism, who now we suspect is having siezures. So far ive seen her whole body drop completely, her head drop, seen her whole arms and/or legs stiffen up, seen her jump her arms or swing them up in the air randomly, seen rapid jerking, seen just also random jerking, eyes rolling back, whole body jerking, mouth drooling, staring off into space then jerking, and so much more(none are diagnosed yet, we called the neurologist, waiting to get back from them). Shes been drooling more and more, and is constantly tired, on top of that, lately shes been feeling sick to her stomach, losing her breath and having a hard time breathing, having mini faint spells, dizzy spells, she threw up the other day, and having lots of gas too. She is also having we assume siezures in the night, she woke up with her tongue swollen, bit, bloody, with a pillow half way down her throat, choking on her drool, etc. I honestly don't know what to do with her. Are these siezures? she is now having a lot of problems breathing, like catching her breath, out of breath, etc, are those related to siezures?
She is verbal to a point, has her days, but uses more sign to communicate, so I'm going mostly from what I see. I honestly think the whatever she is having started becoming more frequent, which i am sure at least 50 times a day, at least, due to severe head-banging(we have been working on her head-banging for years, she has got a lot better then she was as a child). She has been head-banging since she was a child, would that play a role in siezures too? I apologize if i seem sort of lost or dumb-founded, but she already has so many differculties with autism, that we never thought we add siezures to the mix, so now I'm at a loss for answers, please help?
JIM
Re: autism and now siezures?
Submitted by fastjim on Wed, 2009-11-18 - 20:19
How exactly do you know he has siezures at night? what signs should i notice? i sleep on the floor next to her bed because of her self injurious behaviors, she may wake up attacking herself for no apparent reason. I usually fall asleep quick so i never notice she has siezures at night but when she does wake up, i have to quickly act before she destroys everything in her path or herself or worse even me. She functions cognitively around 8-10years old, and she'll be 25 in a couple months. Her family has tried helmets before, she either eats them, breaks through them, or rips them in tiny pieces. What is a vns implant? We're still waiting for the neurologist to get back to us, this is like her 100th neurologist she has seen, its hard to find some who will work with her. Is there any advice you can give me on how to handle these siezures? with her being autistic she'll sieze then attack herself unless we redirect her. Again thank you.
JIM
How exactly do you know he has siezures at night? what signs should i notice? i sleep on the floor next to her bed because of her self injurious behaviors, she may wake up attacking herself for no apparent reason. I usually fall asleep quick so i never notice she has siezures at night but when she does wake up, i have to quickly act before she destroys everything in her path or herself or worse even me. She functions cognitively around 8-10years old, and she'll be 25 in a couple months. Her family has tried helmets before, she either eats them, breaks through them, or rips them in tiny pieces. What is a vns implant? We're still waiting for the neurologist to get back to us, this is like her 100th neurologist she has seen, its hard to find some who will work with her. Is there any advice you can give me on how to handle these siezures? with her being autistic she'll sieze then attack herself unless we redirect her. Again thank you.
JIM