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Does anyone have JME? I have a question.

Sun, 07/20/2008 - 15:38

I've had Epilepsy for pretty much five years now and I've grown more photosensitive and have recently been diagnosed with JME (Juvenile Myoclonic Epliepsy) but I don't have the jerks. I have everything else on the symptoms list but the jerks.

Does anyone else have JME and no jerks? I really don't want a misdiagnosis. I'm going to talk to my neurologist about it but I'm not going to see him for a while and the question is really bugging me.

 

Help?

Comments

Re: Does anyone have JME? I have a question.

Submitted by jammy on Thu, 2008-09-18 - 15:18

to answer your question:

I have JME. I know for sure and when I started having seizures I had jerks. But over the years things have changed I still have grand mal seizures but no jerks. So maybe it is possible. I do know I have JME.

to answer your question:

I have JME. I know for sure and when I started having seizures I had jerks. But over the years things have changed I still have grand mal seizures but no jerks. So maybe it is possible. I do know I have JME.

Re: Does anyone have JME? I have a question.

Submitted by kncarmichae2 on Thu, 2009-09-24 - 23:47
I experienced "jerking" sensations when I was younger around (15-16 yrs) very badly in the mornings to the point where I couldn't even put in my own contacts, eat or brush my own teeth. I am now 21 years old, I out grew them by the time I was 19. I still get a "jerk" here or there when I am sleep deprived. I am VERY photosensitive now (which did not start until last December). I always dismissed those jerky feelings in the mornings as nothing, I thought everyone had them, so I went undiagnosed until I had a grand mal my freshman year of college. I was diagnosed with JME based off of just my photosensitivity also and I did tell them about my previous history.

Re: Does anyone have JME? I have a question.

Submitted by showmeproof on Wed, 2009-10-28 - 20:26
Mine is accompanied with the Jerks.  Keppra seems to help...although still working out the correct dosage.

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