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Temporal lobe surgery
Tue, 07/28/2009 - 03:05Hello to everyone who lives with and loves a person with uncontrolled epilepsy.
My beautiful 9 year old daughter is due to have surgery on the 29th of Sept 2009. Whilst we are excitied about the prospect of, 70% chance of becoming seizure free - we are concerned about the issue of stroke associated with the surgery.
Has anyone experienced negative effects of the surgery?
Concerned mother. Regards, Anne-Marie
Comments
Re: Temporal lobe surgery
Submitted by vigga60@hotmail.com on Wed, 2009-10-28 - 17:46
I saw your letter about your surgery. It is wonderful when it succeed so well. You are probably in similar age as I am, Im now 65. But 10 years ago I went to Mayo Clinic for surgery, and the doctors said it would be 90% sure I could get rid of my epilepsy. But it did not go that way. I had temporal lobe epilepsy, and no medicine can help it. Now I would like to try another surgery, but I don´t know if it is possible. But it is good to hear about you should get rid of AED, that is one of things I would also like to.............
I saw your letter about your surgery. It is wonderful when it succeed so well. You are probably in similar age as I am, Im now 65. But 10 years ago I went to Mayo Clinic for surgery, and the doctors said it would be 90% sure I could get rid of my epilepsy. But it did not go that way. I had temporal lobe epilepsy, and no medicine can help it. Now I would like to try another surgery, but I don´t know if it is possible. But it is good to hear about you should get rid of AED, that is one of things I would also like to.............
Re: Temporal lobe surgery
Submitted by Thomas Jenkins on Tue, 2010-07-27 - 08:15
I'm 64 amd am now being evaluated as a possible surgery candidate. I won't find out until December, just in time for Christmas.
Things have a lot over the past 10 years or so. Good luck.
I'm 64 amd am now being evaluated as a possible surgery candidate. I won't find out until December, just in time for Christmas.
Things have a lot over the past 10 years or so. Good luck.
Re: Temporal lobe surgery
Submitted by aussie2006 on Thu, 2009-09-03 - 07:48
Hi Anne Marie, I had left temporal lobe lobectomy in March 2006 at Westmead Private. I had all the pre surgery testing and video eeg at Westmead public. I had epilepsy which was not controlled by medication for 44 years, I am now (3 & half years later) completly seizure free and off all medication which my surgeon (Dr Dexter) said would not happen because I was on medication for so long. It is a hard decision but it is a life altering one to and your daughters' life will be better for it. I was given a 70% chance of improvent 20% chance there would be no change to seizures from result of surgery and a 10% chance that the seizures would be worse. My surgery involved removal of 5 cms of left temporal lobe and partial hippocampus removal.
Best of luck to you and your daughter
Hi Anne Marie, I had left temporal lobe lobectomy in March 2006 at Westmead Private. I had all the pre surgery testing and video eeg at Westmead public. I had epilepsy which was not controlled by medication for 44 years, I am now (3 & half years later) completly seizure free and off all medication which my surgeon (Dr Dexter) said would not happen because I was on medication for so long. It is a hard decision but it is a life altering one to and your daughters' life will be better for it. I was given a 70% chance of improvent 20% chance there would be no change to seizures from result of surgery and a 10% chance that the seizures would be worse. My surgery involved removal of 5 cms of left temporal lobe and partial hippocampus removal.
Best of luck to you and your daughter