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Nocturnal Seizures / Night seizures

Wed, 09/30/2009 - 19:45
Hello, My name is Danny I am 27 and have been dealing with seizures since 2004. Never before that date have i had one sigh of seizures. it has been one of the worst and hardest battles i have been dealing with also. one questions i have is that the seizures i have are weird, starting like this all the seizures i have had to this day were at night after i had woken up from sleeping, i would wake up have to pee and in a sweat which is weird.  also i have never had any during the day but i have had several grand mal seizures at night like i said. so if anyones has any ideas why this happens please let me know and hope all of you are doing better with your epilepsy.

Comments

Re: Nocturnal Seizures / Night seizures

Submitted by jderry on Mon, 2009-10-12 - 09:54

  i was having nocturnal sez, once every mtn or so bad ones clusters of grand malls. Sometimes I'd end up in the er. What put an end to them was getting off generic med, taking a mild sleeping pill & making sure I eat something before going to bed.That keeps my blood sugar from dropping. I still get powerful life like dreams that I remember.It is wierd that that u can remember something that never happened. Tomorrow it's going to be 7mts & no sez. I'm going to see my nero next mt about driving. It was him & the head nurse along with my wife that fought got to ok the generic with the ins co.I tend to blow my top when dealing with those people.Imagine dealing with the gov. Nocturnal sez are tough to deal with because I have a VNS but because u don't know when to use the magnet and don't feel them coming on and u disrupt the whole house so nobody gets a nights sleep. Like when my kids where babys.

 I was on those generic meds for yrs taking so many I would rattle feeling awful,tremers.balance problems,vision problems,moody,depression u name it yet I was still having break through sez.They tell u they are all the same but don't belive it.A least in my case.Maybe I'm more senitve. good luck & don't ever give up.

 

 

  i was having nocturnal sez, once every mtn or so bad ones clusters of grand malls. Sometimes I'd end up in the er. What put an end to them was getting off generic med, taking a mild sleeping pill & making sure I eat something before going to bed.That keeps my blood sugar from dropping. I still get powerful life like dreams that I remember.It is wierd that that u can remember something that never happened. Tomorrow it's going to be 7mts & no sez. I'm going to see my nero next mt about driving. It was him & the head nurse along with my wife that fought got to ok the generic with the ins co.I tend to blow my top when dealing with those people.Imagine dealing with the gov. Nocturnal sez are tough to deal with because I have a VNS but because u don't know when to use the magnet and don't feel them coming on and u disrupt the whole house so nobody gets a nights sleep. Like when my kids where babys.

 I was on those generic meds for yrs taking so many I would rattle feeling awful,tremers.balance problems,vision problems,moody,depression u name it yet I was still having break through sez.They tell u they are all the same but don't belive it.A least in my case.Maybe I'm more senitve. good luck & don't ever give up.

 

 

Re: Nocturnal Seizures / Night seizures

Submitted by mellion on Thu, 2013-06-06 - 12:18

HI,

Insurance companies cannot make you change to generics when your doctor says you must have name brand.  I switch to generic lamictal and had immediate increase with nocturnal seizures.  My epilepsy Doc wrote name brand only on script only and wrote a short letter stating my problem, and necessity of takind name brand.  I am not able to get insurance in the free market, so I got the PCIP (Pre existing Condition Insurance Program) two years ago.  This is referred to "obama care".  You have a payment like everyone else (mine is $309 monthly).  They approved my name brand Lamictal.  FYI,medicaid has a list of medications they want to decrease individuals  taking because of the cost and lamictal is on the list. 

HI,

Insurance companies cannot make you change to generics when your doctor says you must have name brand.  I switch to generic lamictal and had immediate increase with nocturnal seizures.  My epilepsy Doc wrote name brand only on script only and wrote a short letter stating my problem, and necessity of takind name brand.  I am not able to get insurance in the free market, so I got the PCIP (Pre existing Condition Insurance Program) two years ago.  This is referred to "obama care".  You have a payment like everyone else (mine is $309 monthly).  They approved my name brand Lamictal.  FYI,medicaid has a list of medications they want to decrease individuals  taking because of the cost and lamictal is on the list. 

Re: Nocturnal Seizures / Night seizures

Submitted by btpatton on Mon, 2010-04-26 - 13:49
Hey Danny I am in the same situation as you.  I have to sleep through the night or I tend to have seizures.  I had 2 last night after getting woke up.  I hate them it is sooo scary to deal with them because I think that I have anxiet y about them every night when I lay down.  I have a daughter who is 10 and she is scared to wake me up at night.  I am so sorry that you deal with these they are very strange and I was curious if you take anything

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