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Nocturnal Seizures / Night seizures
Wed, 09/30/2009 - 19:45Comments
Re: Nocturnal Seizures / Night seizures
Submitted by davidtrm on Fri, 2009-10-02 - 23:47
Hi Danny,
This sounds very similar to the seizures that I have, I've never had a seizure while I'm awake always while I'm asleep. I've had both grand mal and petit mal seizures when I've been asleep and what you describe almost always happens to me after a petit mal seizure, I'll wake up needing the toilet and although I don't normally realise at the time I'm normally pretty confused as well, I'll feel like I've had a really bad nightmare which seems to linger after I'm awake if that makes sense. Normally if I have a grand mal seizure I end up on the floor. You don't mention whether your seeing a doctor or are currently on medication, but just to give you some light at the end of the tunnel, I've been on a pretty good programme of AED's for the last few years which has so far dropped my seizures down to about one every six weeks; which doesn't really affect my life in any major way, and hopefully eventually they will be controlled fully. I'm afraid I can't enlighten you to why this only happens at night, it just seems to happen to some people like this, but look on bright side at least your already lying down when your having a seizure:)
Hi Danny,
This sounds very similar to the seizures that I have, I've never had a seizure while I'm awake always while I'm asleep. I've had both grand mal and petit mal seizures when I've been asleep and what you describe almost always happens to me after a petit mal seizure, I'll wake up needing the toilet and although I don't normally realise at the time I'm normally pretty confused as well, I'll feel like I've had a really bad nightmare which seems to linger after I'm awake if that makes sense. Normally if I have a grand mal seizure I end up on the floor. You don't mention whether your seeing a doctor or are currently on medication, but just to give you some light at the end of the tunnel, I've been on a pretty good programme of AED's for the last few years which has so far dropped my seizures down to about one every six weeks; which doesn't really affect my life in any major way, and hopefully eventually they will be controlled fully. I'm afraid I can't enlighten you to why this only happens at night, it just seems to happen to some people like this, but look on bright side at least your already lying down when your having a seizure:)
Re: Nocturnal Seizures / Night seizures
Submitted by George R on Sun, 2009-10-11 - 16:35
Oh yes, I sure know what you're going through! Actually, I think that for years before doctors had determined that I had epilepsy, I'd been having so-called "nightmares" as a kid. And that my parents didn't recognize that they were actually nocturnal seizures. But then, that was many years ago and lots of parents didn't even know the definition of "epilepsy." But in my mid-20s I got fully examined over several days in a hospital here in New York, and it was determined that I had (and still have, 40 years later) temporal lobe epilepsy. I've been through surgery, tried about 15 different pills, lost jobs because of seizures, yet still love my life. But I can expect a seizure (often at night when my blood sugar is at its lowest) once or twice a month. Until I found a pill that does help (but doesn't "cure") I'd wake up in urine--sometimes even more--and not have any idea where I was, who I was, or even what had occurred. No, you're not alone. And do remember, over 55-million people 'round the world have various forms of this neurological disorder. The smartest thing is to follow a trusted doctor's suggestions and do not lose contact with other people who also have epilepsy. I've learn much from them--much!
Oh yes, I sure know what you're going through! Actually, I think that for years before doctors had determined that I had epilepsy, I'd been having so-called "nightmares" as a kid. And that my parents didn't recognize that they were actually nocturnal seizures. But then, that was many years ago and lots of parents didn't even know the definition of "epilepsy." But in my mid-20s I got fully examined over several days in a hospital here in New York, and it was determined that I had (and still have, 40 years later) temporal lobe epilepsy. I've been through surgery, tried about 15 different pills, lost jobs because of seizures, yet still love my life. But I can expect a seizure (often at night when my blood sugar is at its lowest) once or twice a month. Until I found a pill that does help (but doesn't "cure") I'd wake up in urine--sometimes even more--and not have any idea where I was, who I was, or even what had occurred. No, you're not alone. And do remember, over 55-million people 'round the world have various forms of this neurological disorder. The smartest thing is to follow a trusted doctor's suggestions and do not lose contact with other people who also have epilepsy. I've learn much from them--much!
Re: Nocturnal Seizures / Night seizures
Submitted by colamaid09 on Fri, 2009-10-02 - 00:19
Hello csihar
I kinda can relate to what you're going through. You see I use to have the granmals, but now I'm just having the pedimals. I have had the pedimals for 33yrs now, but I started having the granmals only four yrs ago. But I have been having the granmals for four yrs now. Since I started having the granmal sz I haven't been able to sleep in my own room by myself, and I live with my parents so I feel like I'm going through a great deal. I mean I'm 36yrs old and I can't even sleep by myself, because I tend to wake up in the middle of the night, and I feel like I'm losing oxygen, and I can't yell out, and I can't move my arms and legs. I have asked my doctors if I could possibly be having a sz at night, but they say no, and they want me to have a sleep study done. Except that I do have these sleep studies, I feel like my body shuts down, so they can't ever find out what the sympton is or what the cause is. so you're not alone in this, I mean none of us that're in this situation is ever alone we always have others that are dealing with just about the same issues.
Take care of yourself, and God Bless you!
Hello csihar
I kinda can relate to what you're going through. You see I use to have the granmals, but now I'm just having the pedimals. I have had the pedimals for 33yrs now, but I started having the granmals only four yrs ago. But I have been having the granmals for four yrs now. Since I started having the granmal sz I haven't been able to sleep in my own room by myself, and I live with my parents so I feel like I'm going through a great deal. I mean I'm 36yrs old and I can't even sleep by myself, because I tend to wake up in the middle of the night, and I feel like I'm losing oxygen, and I can't yell out, and I can't move my arms and legs. I have asked my doctors if I could possibly be having a sz at night, but they say no, and they want me to have a sleep study done. Except that I do have these sleep studies, I feel like my body shuts down, so they can't ever find out what the sympton is or what the cause is. so you're not alone in this, I mean none of us that're in this situation is ever alone we always have others that are dealing with just about the same issues.
Take care of yourself, and God Bless you!