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Feedback for veeg, seizure monitoring!! Please share your experience!!!

Sat, 11/15/2008 - 12:03

Hello,

I am a patient volunteering at my hospital on a team striving to improve the safety in the seizure monitoring unit.  Our work is published at the AES annual meeting.  The information gathered helps hospitals all over the world make the VEEG monitoring unit a safer, more informational experience for everyone involved! Please share with me your experience in the hospital, and the things you would have liked to see done differently, or the things you would have like more information about.

 Thank you for your time

Comments

Re: Feedback for veeg, seizure monitoring!!

Submitted by ahardway on Tue, 2008-12-09 - 19:44

Hi Mama-Mia

I hope things work out great for you! As for me I myself had a VEEG done in the EMU floor at Ruby Memorial Hospital in Morgantown, WV also known as West Virginia University Hospital. Mine was done summer of 2007. My experience there as a patient went very well.  I had my 1st seizure right after I turned 24 in 2005.  There was no known cause and I had several  EEG's and MRI's done with no luck whats so ever as to where my seizures are comming from. Finally in summer 2007 after 2 years I was put in the EMU at WVU Hospital and placed on a VEEG right after I had a very severe Grand Mal. Unfortionatley, nothing happend until I was there for 6 days and they took me completley off of my meds.  It was not until the next day when I got a call from the neuro. who was on my case told me that the regular electrodes that I had on my head actually saw that I had a very small petit mal in my Left temporal lobe which obviously was not seen on the video.  After that i did have another Grand Mal that following November where the docs hooked me up to the regular EEG and they were still comming from the same place.  That was my last grand mal which I was having every 3 months, but this year in 2008 I started having petit mals every other month before my periods.  This past June I had the WADA Test done since i was conciderd a "perfect candidtate" for surgery. My tests came back in September and were great. I just had the surgery done to my Left temporal Lobe last month on November 4th.  I am doing great so far. As for the result of what was found in the VEEG things have been doing great. In fact, the VEEG was the only thing that found out what was wrong with me. It is a shame however, that the only way of finding someting wrong is to make it happen. In fact, because of how the VEEG changed my perspective I have even started to tell people all over this site just how well it worked for me!

 

 

 

Hi Mama-Mia

I hope things work out great for you! As for me I myself had a VEEG done in the EMU floor at Ruby Memorial Hospital in Morgantown, WV also known as West Virginia University Hospital. Mine was done summer of 2007. My experience there as a patient went very well.  I had my 1st seizure right after I turned 24 in 2005.  There was no known cause and I had several  EEG's and MRI's done with no luck whats so ever as to where my seizures are comming from. Finally in summer 2007 after 2 years I was put in the EMU at WVU Hospital and placed on a VEEG right after I had a very severe Grand Mal. Unfortionatley, nothing happend until I was there for 6 days and they took me completley off of my meds.  It was not until the next day when I got a call from the neuro. who was on my case told me that the regular electrodes that I had on my head actually saw that I had a very small petit mal in my Left temporal lobe which obviously was not seen on the video.  After that i did have another Grand Mal that following November where the docs hooked me up to the regular EEG and they were still comming from the same place.  That was my last grand mal which I was having every 3 months, but this year in 2008 I started having petit mals every other month before my periods.  This past June I had the WADA Test done since i was conciderd a "perfect candidtate" for surgery. My tests came back in September and were great. I just had the surgery done to my Left temporal Lobe last month on November 4th.  I am doing great so far. As for the result of what was found in the VEEG things have been doing great. In fact, the VEEG was the only thing that found out what was wrong with me. It is a shame however, that the only way of finding someting wrong is to make it happen. In fact, because of how the VEEG changed my perspective I have even started to tell people all over this site just how well it worked for me!

 

 

 

Re: Feedback for veeg, seizure monitoring!!

Submitted by rikk on Wed, 2008-12-31 - 20:37

been in two different units.

safey related issure.  wi-fi available on unit.  eliminates boredom and gains better compliance with safety restrictions.   better t.v programming availablility.  electric motor operated side rails in the bed that the patient can operate, to reduce the possibility of falls,  when people need to go to bed, and to make it easier to raise the side rails for safety compliance after they return to bed. eegs leads that are shielded from electrical sourses. ie.  charging batteries on a laptop while using the laptop.

standard instructions for all eeg techs, and certifications that they have met these standard prior to working on the unit.  in both places no two tech even placed the leads in the same place.  only one tech use the measurement technique, in lead placement.

just some thoughts,  thought it may be of help.  rikk

 

been in two different units.

safey related issure.  wi-fi available on unit.  eliminates boredom and gains better compliance with safety restrictions.   better t.v programming availablility.  electric motor operated side rails in the bed that the patient can operate, to reduce the possibility of falls,  when people need to go to bed, and to make it easier to raise the side rails for safety compliance after they return to bed. eegs leads that are shielded from electrical sourses. ie.  charging batteries on a laptop while using the laptop.

standard instructions for all eeg techs, and certifications that they have met these standard prior to working on the unit.  in both places no two tech even placed the leads in the same place.  only one tech use the measurement technique, in lead placement.

just some thoughts,  thought it may be of help.  rikk

 

THANK YOU!!

Submitted by Mama-Mia on Thu, 2009-09-24 - 00:16
I am now meeting with new nurses to help give them an idea of what it is like for a patient in the monitoring unit.  Your comments really help me give them a wide view!! Thank you so much!!

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