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Normal EEG but continuing seizures

Thu, 04/23/2009 - 13:55

Hi,

I have been having e for the past 12-13 years. It was rather well-controlled with medication (phenobarbital) till about 6 to 7 months back, when it started again but with different characteristics. The characteristics changed again about a month back, but my EEG which was sleep-deprived with medication came out to be normal.

Is this possible or could it be because of the mugs of coffee that i had to stay awake? Incidentally, the week i had my eeg, i was seizure free.

Would appreciate if anyone could throw some light on this! :-)

 

Comments

Re: Normal EEG but continuing seizures

Submitted by shesparky on Fri, 2009-09-04 - 18:31
Hi Fireblade.  You are the only one that comes up when I do a search for Nuvigil.  I've had seizures and been on Keppra since 2007.  Now I have been diagnosed with a form of narcolepsy.  The Doc wants me on Nuvigil.  I'm a little scared to add this med.  What in general can you say about your experience with it?

Re: Normal EEG but continuing seizures

Submitted by JReinhart on Sat, 2010-09-11 - 23:13

I am a 43Y old male diagnosed with partial complex seizures at age eleven. I have been to 7-9 diffeerent neurologists. I have been on many meds- meberal, depakote, neurontin, topamax, tranxene, etc... all without sccess.  I have had several MRI's and EEG's which all came back normal.

My seizures became more severe around age 35 (I started losing consciousness and falling to the ground etc..), but I wasn't very good at pursuing the issue because I believed it would result in the same old thing.  Nobody knows more than I how tricky epileptic seizures are.  Or seizures in general.

In July of 2009 I had a severe anxiety attack resulting from a liftime of repressing a lot of different emotions as a result of the epilepsy.  I ended up in the ER for 5 days.  They put me on the EEG machine (again) and found nothing.  Ran the MRI and found nothing. By the grace of God my Neurologist (I had been going to him for 12 years) was on call that Sunday reluctantly came to see me. (the trip to the ER in "09) He pawned me of to a Eptoligist.  In three visits the Eptoligist found the Focus of my Epilepsy. 

The Eptoligist started with a inpatient 7-10 day video EEG (which I didn't want to do because they never work).  Day 2 he cut my meds in half. Day 3- no more meds an no more sleep.  It took 52 hours (without sleep)and than the seizures started coming.  I gave him three seizures inside of a 24 hour period after that point.

The Eptoligist has done what 8 neuroligist could not do in 33 years.  He says I am an excellent canidate for surgery to remove the hot spot.

You need a siscom MRI (more powerful lens) and a PET exam if they can locate the hot spots.

Get to the right doctor- it took 5 days and no meds and no sleep to produce a seizure.  No other doctor ever sugested this type of activity in my time with the illness.

Good Luck

I am a 43Y old male diagnosed with partial complex seizures at age eleven. I have been to 7-9 diffeerent neurologists. I have been on many meds- meberal, depakote, neurontin, topamax, tranxene, etc... all without sccess.  I have had several MRI's and EEG's which all came back normal.

My seizures became more severe around age 35 (I started losing consciousness and falling to the ground etc..), but I wasn't very good at pursuing the issue because I believed it would result in the same old thing.  Nobody knows more than I how tricky epileptic seizures are.  Or seizures in general.

In July of 2009 I had a severe anxiety attack resulting from a liftime of repressing a lot of different emotions as a result of the epilepsy.  I ended up in the ER for 5 days.  They put me on the EEG machine (again) and found nothing.  Ran the MRI and found nothing. By the grace of God my Neurologist (I had been going to him for 12 years) was on call that Sunday reluctantly came to see me. (the trip to the ER in "09) He pawned me of to a Eptoligist.  In three visits the Eptoligist found the Focus of my Epilepsy. 

The Eptoligist started with a inpatient 7-10 day video EEG (which I didn't want to do because they never work).  Day 2 he cut my meds in half. Day 3- no more meds an no more sleep.  It took 52 hours (without sleep)and than the seizures started coming.  I gave him three seizures inside of a 24 hour period after that point.

The Eptoligist has done what 8 neuroligist could not do in 33 years.  He says I am an excellent canidate for surgery to remove the hot spot.

You need a siscom MRI (more powerful lens) and a PET exam if they can locate the hot spots.

Get to the right doctor- it took 5 days and no meds and no sleep to produce a seizure.  No other doctor ever sugested this type of activity in my time with the illness.

Good Luck

Re: Normal EEG but continuing seizures

Submitted by sifon187 on Fri, 2009-05-08 - 07:47

I have had three sleep deprived EEG's done while on medication and nothing has showed yet. I have Complex Partial Seizures but they never seem to fire when you want them to. The caffine in the coffee could lean more towards triggering a seizure then preventing though, so I doubt it caused you not to have seizure activity. I guess I just figure you had no seizure activity at the time of the EEG taking place. 

 

 

I have had three sleep deprived EEG's done while on medication and nothing has showed yet. I have Complex Partial Seizures but they never seem to fire when you want them to. The caffine in the coffee could lean more towards triggering a seizure then preventing though, so I doubt it caused you not to have seizure activity. I guess I just figure you had no seizure activity at the time of the EEG taking place. 

 

 

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