Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
forceful blinking-possible seizure activity?
Wed, 07/29/2009 - 21:09Hi everyone,
I have 8 year old twins that both have epilepsy. They both have had seizures since they were 10 months old. They are both on lamictal. Last week, one of them started blinking his eyes excessively. I was concerned because it was similar to what he did about 2.5 years ago, but back then, he also had some involuntary twitching of his arms. We increased his medication and his symptoms seemed to disapperar.
I contacted the neurologist and they recommended a vision test. I was livid because I know this had nothing to do with his vision. About a week before, he had a grand mal that caused him to hit his head while we were out bowling with his friends. I was afraid maybe this had something to do with it.
I really pushed the issue about coming in to see the dr but they dismissed it, which has me seriously thinking about seeing a different dr. I finally got them to do an EEG. It was actually a video EEG and I haven't heard anything back on that.
My concern is that it seems the seizures are becoming much more forceful, almost as if he's wincing in pain. He says it doesn't hurt and he can't help it. I have been having trouble in finding any information.
What do you guys think? Does anyone have any experience with this?
Re: forceful blinking-possible seizure activity?
Submitted by ROCKNROLL on Wed, 2009-08-26 - 02:03
I HAVE THAT ALL THE TIME. DEFINITELY SEIZURES ON MY PART, BUT CAN'T SAY FOR YOUR CHILD. THEN IT PROGRESSED TO THE FOREHEAD, AND UPPER TOP OF FACE, NOW FULL FACE. OR BLINKING AND THEN ANOTHER CPS OR MYOCLONIC. GOOD LUCK. ALWAYS GET MORE THAN ONE OPINION. I HAVE FOUND THAT THE DOCS CAN SEE THE EXACT SAME THING AT THE SAME TIME, AND HAVE 3 DIFFERENT OPINOINS AS TO WHETHER A SEIZURE IS A SEIZURE. DRIVES ONE NUTS.
I WISH YOU PEACE, LOVE, BLESSINGS, JOY.........JAN
I USE ALL CAPS FOR THE VISUALLY IMPAIRED.
I HAVE THAT ALL THE TIME. DEFINITELY SEIZURES ON MY PART, BUT CAN'T SAY FOR YOUR CHILD. THEN IT PROGRESSED TO THE FOREHEAD, AND UPPER TOP OF FACE, NOW FULL FACE. OR BLINKING AND THEN ANOTHER CPS OR MYOCLONIC. GOOD LUCK. ALWAYS GET MORE THAN ONE OPINION. I HAVE FOUND THAT THE DOCS CAN SEE THE EXACT SAME THING AT THE SAME TIME, AND HAVE 3 DIFFERENT OPINOINS AS TO WHETHER A SEIZURE IS A SEIZURE. DRIVES ONE NUTS.
I WISH YOU PEACE, LOVE, BLESSINGS, JOY.........JAN
I USE ALL CAPS FOR THE VISUALLY IMPAIRED.