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Risk of left temporal lobe surgery
Sun, 08/23/2009 - 23:43I am 30 and have had epilepsy for about 7 years over that time things havent improved, they have gradually got worse. I recently went to see my neuro and i was very surprised that the first thing he mentioned was surgery. However he did say that because it is my left temporal lobe, the surgery would be too risky. He mentioned that my memory and my speech could be effected. So he said that i have to just keep persevering till i find a medication that works!! Im not sure if it is the fact that i live in New Zealand and things like that are extremely expensive and the public health system here isnt very good.
I have been reading peoples stories about the success that they have had with temporal lobe surgery and i would like to be able to think that it can work for me too.
If anybody else has been given these warnings but been able to go ahead with the surgery, it would be good to know how you did it.
Thanks
Comments
Re: Risk of left temporal lobe surgery
Submitted by Roxanne D on Tue, 2009-08-25 - 13:36
I hope you make the right decision. I had the surgery after going through every test you can imagine. I have compelx partial petit mals. When I'm holding a conversation, I tell the definition of the words that my daughter can use who is 13. Her vocabulary is better than mine. After the surgery I was seizure free for 2 years. The dr finally picked the drug that worked after 8 years. I started having them when I was 22. They said it was from scar tissue from a high fever when I was a baby. Another dr. said that they did not take all of the scar during surgery so extra pathways found their way back to the tissue. Find the right dr and good luck.
Roxanne
I hope you make the right decision. I had the surgery after going through every test you can imagine. I have compelx partial petit mals. When I'm holding a conversation, I tell the definition of the words that my daughter can use who is 13. Her vocabulary is better than mine. After the surgery I was seizure free for 2 years. The dr finally picked the drug that worked after 8 years. I started having them when I was 22. They said it was from scar tissue from a high fever when I was a baby. Another dr. said that they did not take all of the scar during surgery so extra pathways found their way back to the tissue. Find the right dr and good luck.
Roxanne
Re: Risk of left temporal lobe surgery
Submitted by Ghebre on Wed, 2013-04-03 - 19:06
GOD Debi, I admire your courage.
I never knew nor cared to know anything about Epilepsy for most of my life.
But, for the last 10 years, accepting my Grand mal seizures have been far more difficult beyond accepting the medical options, even tough, CONTEMPLATING to seek "Surgery" has crossed my mind many times over, even though I'm NOT even so sure, the "Surgery" will answer my prayers.
Thank you for sharing your achievements, for you have inspired me to consider the option.
It’s people like you who give me hope that one of these days, I just have to go through it, "SURGERY",
Wishing you all the best!!!
Ghebre
Thanks God for this site, I have come to love this site,,, Epilepsy.com, for I learned more about my misery in here than in the hospitals.
GOD Debi, I admire your courage.
I never knew nor cared to know anything about Epilepsy for most of my life.
But, for the last 10 years, accepting my Grand mal seizures have been far more difficult beyond accepting the medical options, even tough, CONTEMPLATING to seek "Surgery" has crossed my mind many times over, even though I'm NOT even so sure, the "Surgery" will answer my prayers.
Thank you for sharing your achievements, for you have inspired me to consider the option.
It’s people like you who give me hope that one of these days, I just have to go through it, "SURGERY",
Wishing you all the best!!!
Ghebre
Thanks God for this site, I have come to love this site,,, Epilepsy.com, for I learned more about my misery in here than in the hospitals.