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Temporal lobe surgery

Tue, 07/28/2009 - 03:05

Hello to everyone who lives with and loves a person with uncontrolled epilepsy.

My beautiful 9 year old daughter is due to have surgery on the 29th of Sept 2009. Whilst we are excitied about the prospect of, 70% chance of becoming seizure free - we are concerned about the issue of stroke associated with the surgery. 

Has anyone experienced negative effects of the surgery? 

Concerned mother. Regards, Anne-Marie  

 

 

Comments

Re: Temporal lobe surgery

Submitted by omega3 on Tue, 2009-07-28 - 08:29

Hi Anne Marie,

My friend in Delaware is going to have surgery.Only in the frontal lobe and I am in the process of having all the necessary tests leading up to temporal lobe surgery.I wish I could help more but want to offer my prayers to you and your nine year old daughter.Lord knows I cannot experience your fears as a mom.Blessings.

PS - The 29th of September is my cousins birthday so that will bring you good luck :)

Hi Anne Marie,

My friend in Delaware is going to have surgery.Only in the frontal lobe and I am in the process of having all the necessary tests leading up to temporal lobe surgery.I wish I could help more but want to offer my prayers to you and your nine year old daughter.Lord knows I cannot experience your fears as a mom.Blessings.

PS - The 29th of September is my cousins birthday so that will bring you good luck :)

Re: Temporal lobe surgery

Submitted by a_mkelly2000 on Sun, 2009-08-16 - 06:53
Tell your cousin happy birthday from me & my daughter. It was very nice of you to take the time to make a total stranger feel more comfortable - with what has been the hardest decision of my life. Thank you again xo

Re: Temporal lobe surgery

Submitted by mdc on Fri, 2009-08-21 - 12:49
Hello there, i had surgery on my right side 2 and a half years ago. I was given a 70% chance of a cure. I have not had one seizure, not even in recovery as they said i would have. The chances of a stroke were slim. When they asked how i felt after my operation i said i feel like something has gone. Touch wood it has for good. I am a primary school teacher, i returned to work having had 2 terms off. It has changed my life and now i wish to channel my experiences teaching children with special needs who have epilepsy and have experienced surgery. It changed my life after 15 years of utter misery. i will never look back.

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