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Seizures During Sleep

Wed, 02/11/2009 - 22:16
Topic: Living With Epilepsy - Adults

 

Hi, I'm new to this site. I have most of my seizures in my sleep or in the morning after waking up.. my last one being two days ago. It seems that either illicit drugs, alcohol or lack of sleep bring most of my seizures on, and I'm working on getting them under control by giving up these things rather than taking my medication, I find the medication Valpro has some bad side effects.

I think my last seizure  was a big one becauseI have been a scattered mess since then, I've slept for two days straight now and I have yet to leave the house. I can't think straight so if this doesn't make any sense I hope u understand why. My whole body is aching and my memory is slowly returning.

Anyways I'm almost 25 and I was diagnosed about 2 1/2 years ago.. does anybody else experience sleep related seizures?.. I truly believe if I can get enough sleep I will  get my epiliepsy under control.

Thanks for any of your comments.

Comments

Re: Seizures During Sleep

Submitted by cvargas on Mon, 2009-06-08 - 20:30

 hi there mournin,

 boy I think we all have a story... Im 37 and I was 13 when I was diagnosed and well I would have my sz while I was asleep.

the thing is I really cant remember all of them anymore...ok I remember the first 3 I remember the one where I fell out of bed and almost cut my eye oh and i definatly remember the one where I was driving......yeah I do get memory loss but see its been 24 years for me and ive been on just about every med for E you can think of and well I had brain surgery so.....

I know I cant drink I know i have to have a full nite sleep i know stress will bring a sz on i know for me at least flashing lights will trigger a sz even certain sounds also will trigger a sz I have to eat like a diabetic as well or it will trigger a sz ......

BUT if I didnt do the Dance I would have never known how my life would be

I dont regret any of it I keep fighting back im not gonna let E win!!!!!!! you cant either get yourself back wipe the dust off your knees and keep going....keep learning ...keep fighting

Never ever give up

`Christina Vargas

 hi there mournin,

 boy I think we all have a story... Im 37 and I was 13 when I was diagnosed and well I would have my sz while I was asleep.

the thing is I really cant remember all of them anymore...ok I remember the first 3 I remember the one where I fell out of bed and almost cut my eye oh and i definatly remember the one where I was driving......yeah I do get memory loss but see its been 24 years for me and ive been on just about every med for E you can think of and well I had brain surgery so.....

I know I cant drink I know i have to have a full nite sleep i know stress will bring a sz on i know for me at least flashing lights will trigger a sz even certain sounds also will trigger a sz I have to eat like a diabetic as well or it will trigger a sz ......

BUT if I didnt do the Dance I would have never known how my life would be

I dont regret any of it I keep fighting back im not gonna let E win!!!!!!! you cant either get yourself back wipe the dust off your knees and keep going....keep learning ...keep fighting

Never ever give up

`Christina Vargas

Re: Seizures During Sleep

Submitted by pawps on Wed, 2009-06-10 - 03:44
I admire your attitude, and feel very much the same as you - I will not let E win. I am 58 years old now and had my first seizure when I was 19, so it is a long time! I have been taking Epanutin capsules 100mg and 50ml pill only at night, and it has been controlled most of the time, but if I am stressed, have wine, or eat certain rich foods, they start again. Just recently have been told to increase my calcium intake, as my bone density is decreasing, and was taking the pills at the same time. As a result I started having seizures again, and the Dr has said it could be due to the Epanutin not being absorbed (because of the calcium). It also occurs when I take flu medication, so one has to be very careful what medication is taken. Enough sleep is also important. I am fortunate to have a supportive family and they have helped me stay positive and fight on! Pawps.

Re: Seizures During Sleep

Submitted by LadyJane on Wed, 2009-08-19 - 14:00

Hi pawps.

Just wanted to respond to your comment about the calcium interfering with your seizure meds.  I am almost 50 ...soon...ugh...lol.....and I have been having more seizure or anxiety...we're not sure which...and I am also taking Calcium supplements and now I'm wondering if maybe that could be causing some of my problems?  Hmmm..interesting...I also have a very supportive family, couldn't do this with them.  Take Care.

Hi pawps.

Just wanted to respond to your comment about the calcium interfering with your seizure meds.  I am almost 50 ...soon...ugh...lol.....and I have been having more seizure or anxiety...we're not sure which...and I am also taking Calcium supplements and now I'm wondering if maybe that could be causing some of my problems?  Hmmm..interesting...I also have a very supportive family, couldn't do this with them.  Take Care.

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