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Temporal lobe surgery

Tue, 07/28/2009 - 03:05

Hello to everyone who lives with and loves a person with uncontrolled epilepsy.

My beautiful 9 year old daughter is due to have surgery on the 29th of Sept 2009. Whilst we are excitied about the prospect of, 70% chance of becoming seizure free - we are concerned about the issue of stroke associated with the surgery. 

Has anyone experienced negative effects of the surgery? 

Concerned mother. Regards, Anne-Marie  

 

 

Comments

Re: Temporal lobe surgery

Submitted by pick61 on Sun, 2009-08-16 - 10:19

Hello Anne-Marie:

I had a left temporal lobectomy done two summers ago, and haven't regretted it for a second.  It was a tough decision for me to make initially, but in hindsight, was sooooooo worth it.

Good luck to your daughter as she prepares for surgery, and to you as you wait and worry as Mom's do.

Hello Anne-Marie:

I had a left temporal lobectomy done two summers ago, and haven't regretted it for a second.  It was a tough decision for me to make initially, but in hindsight, was sooooooo worth it.

Good luck to your daughter as she prepares for surgery, and to you as you wait and worry as Mom's do.

Re: Temporal lobe surgery

Submitted by pa_lady on Sun, 2009-08-16 - 21:09

I had a right temporal lobectomy 3 years ago for uncontrolled seizures--my chance of success was 80%.  It was the best decision I've ever made.  I was surprised at how comfortable I was within days of the surgery.  I am now able to work full time, drive and complete my master's degree.  My IQ test results improved after one year because my brain was able to heal itself when I stopped having seizures. 

Definitely follow the doctor's orders always--I was terrified of having a stroke, but I was safe!  Please keep us posted!

I wish the best for your daughter!

 

I had a right temporal lobectomy 3 years ago for uncontrolled seizures--my chance of success was 80%.  It was the best decision I've ever made.  I was surprised at how comfortable I was within days of the surgery.  I am now able to work full time, drive and complete my master's degree.  My IQ test results improved after one year because my brain was able to heal itself when I stopped having seizures. 

Definitely follow the doctor's orders always--I was terrified of having a stroke, but I was safe!  Please keep us posted!

I wish the best for your daughter!

 

Re: Temporal lobe surgery

Submitted by teachergreen on Sat, 2009-08-22 - 17:56

hello,

may i ask your age? i've had seizures for 16 yrs. i have 4-6 a month. My job is questionable because i'm an elementary teacher. I just finished my masters which makes me proud. my seizures don't occur in the same place and i think deep and the neurologist doesn't recommend surgery. Maybe menopause will make a difference. I just hate not knowing when the seizure can pop-up. 

i'm happy to hear about your recovery.

hello,

may i ask your age? i've had seizures for 16 yrs. i have 4-6 a month. My job is questionable because i'm an elementary teacher. I just finished my masters which makes me proud. my seizures don't occur in the same place and i think deep and the neurologist doesn't recommend surgery. Maybe menopause will make a difference. I just hate not knowing when the seizure can pop-up. 

i'm happy to hear about your recovery.

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