Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Temporal lobe surgery

Tue, 07/28/2009 - 03:05

Hello to everyone who lives with and loves a person with uncontrolled epilepsy.

My beautiful 9 year old daughter is due to have surgery on the 29th of Sept 2009. Whilst we are excitied about the prospect of, 70% chance of becoming seizure free - we are concerned about the issue of stroke associated with the surgery. 

Has anyone experienced negative effects of the surgery? 

Concerned mother. Regards, Anne-Marie  

 

 

Comments

Re: Temporal lobe surgery

Submitted by bunnydog on Mon, 2009-08-10 - 20:16

Anne-Marie -

 I am in a different situation but it is related.  I have had three temporal-lobe surgeries (left side) to remove a recurrent brain tumor.  Now, in my case, the surgeries have caused the seizures, but they certainly didn't cause a stroke.  I remember that I was very worried about stroke when I went in for the first surgery, but when I came out alive & well I was able to relax about it.  No strokes on any of the 3 surgeries.  I am 42 now; this all started when I was 30.

hope that helps

bunnydog

Anne-Marie -

 I am in a different situation but it is related.  I have had three temporal-lobe surgeries (left side) to remove a recurrent brain tumor.  Now, in my case, the surgeries have caused the seizures, but they certainly didn't cause a stroke.  I remember that I was very worried about stroke when I went in for the first surgery, but when I came out alive & well I was able to relax about it.  No strokes on any of the 3 surgeries.  I am 42 now; this all started when I was 30.

hope that helps

bunnydog

Re: Temporal lobe surgery

Submitted by a_mkelly2000 on Sun, 2009-08-16 - 06:47

Thank you so much for taking the time to response to my question. I am sitting here with tears in my eyes, knowing that somewhere in the world - someone took the time to answer my question.

I will entrust my daughter to the amazing doctors at Sydney's Westmead Childrens Hospital. Thank you again. xo

Thank you so much for taking the time to response to my question. I am sitting here with tears in my eyes, knowing that somewhere in the world - someone took the time to answer my question.

I will entrust my daughter to the amazing doctors at Sydney's Westmead Childrens Hospital. Thank you again. xo

Re: Temporal lobe surgery

Submitted by kjbosman on Tue, 2009-08-18 - 22:34

Hello Ann-Marie,

 I would like to say you are more than welcome for any assistance that is needed.  If you wish for any further assistance, feel free to contact me, and I would LOVE to help out any and every way I can.  My thoughts and prayers are there for you and your daughter.  Best wishes.

 

Hello Ann-Marie,

 I would like to say you are more than welcome for any assistance that is needed.  If you wish for any further assistance, feel free to contact me, and I would LOVE to help out any and every way I can.  My thoughts and prayers are there for you and your daughter.  Best wishes.

 

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.