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Seizures During Sleep

Wed, 02/11/2009 - 22:16

 

Hi, I'm new to this site. I have most of my seizures in my sleep or in the morning after waking up.. my last one being two days ago. It seems that either illicit drugs, alcohol or lack of sleep bring most of my seizures on, and I'm working on getting them under control by giving up these things rather than taking my medication, I find the medication Valpro has some bad side effects.

I think my last seizure  was a big one becauseI have been a scattered mess since then, I've slept for two days straight now and I have yet to leave the house. I can't think straight so if this doesn't make any sense I hope u understand why. My whole body is aching and my memory is slowly returning.

Anyways I'm almost 25 and I was diagnosed about 2 1/2 years ago.. does anybody else experience sleep related seizures?.. I truly believe if I can get enough sleep I will  get my epiliepsy under control.

Thanks for any of your comments.

Comments

Re: Seizures During Sleep

Submitted by desire775 on Fri, 2009-08-07 - 23:13

I am 24 now and was diagnosed at 18.  I was coming home from Washington(state) to South Dakota with my family.  I fell asleep in the van and woke up on a hospital bed.  My mom saw me haveing a seizer in the back of the van and went strate to the hospital.  Befor that  I would wake up in a puddal of pee, and sore musals.  I would just throw my sheats in the washer and flip my matres cuz I thout that I would just get made fun of for still wetting my bed at 16.  My first seizer wail awake was not for 2 years after that.  Sens then I have had about 5 I think, but that is only the grand mals.  I have know idea about the leser ones I have them all the time.

I have hedakes all the time, like everyday allmons.  I have thout that it was a sideafect of the meds that I am on.  My doc. gave me a med for them, but it is about $40a mont.  I was doing some resurch and found out that deing low in folic acid canmake it happen.  then I remember that my first doc sead something about being prom to that so I have started on a folic acid supliment and that has helped so far.

I sometimes wake up at two different times.  I will be awake physically but not mentally.  That will come a little later.  I have trubal doing anything for 1/2 the day, even moving.  I am usually am back to normal by the next day.

Dez Lovik

I am 24 now and was diagnosed at 18.  I was coming home from Washington(state) to South Dakota with my family.  I fell asleep in the van and woke up on a hospital bed.  My mom saw me haveing a seizer in the back of the van and went strate to the hospital.  Befor that  I would wake up in a puddal of pee, and sore musals.  I would just throw my sheats in the washer and flip my matres cuz I thout that I would just get made fun of for still wetting my bed at 16.  My first seizer wail awake was not for 2 years after that.  Sens then I have had about 5 I think, but that is only the grand mals.  I have know idea about the leser ones I have them all the time.

I have hedakes all the time, like everyday allmons.  I have thout that it was a sideafect of the meds that I am on.  My doc. gave me a med for them, but it is about $40a mont.  I was doing some resurch and found out that deing low in folic acid canmake it happen.  then I remember that my first doc sead something about being prom to that so I have started on a folic acid supliment and that has helped so far.

I sometimes wake up at two different times.  I will be awake physically but not mentally.  That will come a little later.  I have trubal doing anything for 1/2 the day, even moving.  I am usually am back to normal by the next day.

Dez Lovik

Re: Seizures During Sleep

Submitted by NewJersey on Tue, 2010-01-05 - 09:38

Des, you wrote

so I have started on a folic acid supliment and that has helped so far.

Since I started supplementing with folic acid, I have been having trouble with my Dilantin level.  I suspect that the folic acid supplements have been lowering my blood level of phenytoin.

http://my.epilepsy.com/discussion/987128

If you continue to take the folic acid supplements and you see a similar problem, will you please leave a comment on the discussion above?

Thanks and good luck,

NewJersey

 

Des, you wrote

so I have started on a folic acid supliment and that has helped so far.

Since I started supplementing with folic acid, I have been having trouble with my Dilantin level.  I suspect that the folic acid supplements have been lowering my blood level of phenytoin.

http://my.epilepsy.com/discussion/987128

If you continue to take the folic acid supplements and you see a similar problem, will you please leave a comment on the discussion above?

Thanks and good luck,

NewJersey

 

Re: Seizures During Sleep

Submitted by tom1971 on Mon, 2009-08-10 - 15:42
I too have seizures during sleep about three per month. My wife thinks they happen when I worked to hard durring the day or because I have a couple of beers during the a week. I was taking lamictal at that tiime 400mg/ day, but the doctor prescribed Kepra 1000 mg/day and I haven'nt had any seizures in the last month

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