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Temporal lobe surgery
Tue, 07/28/2009 - 03:05Hello to everyone who lives with and loves a person with uncontrolled epilepsy.
My beautiful 9 year old daughter is due to have surgery on the 29th of Sept 2009. Whilst we are excitied about the prospect of, 70% chance of becoming seizure free - we are concerned about the issue of stroke associated with the surgery.
Has anyone experienced negative effects of the surgery?
Concerned mother. Regards, Anne-Marie
Comments
Re: Temporal lobe surgery
Submitted by johnnyd50 on Sun, 2009-08-09 - 15:32
Good afternoon , I did have epilepsey seisures for 5 years, they started when i was 49 years old, I had many test over the last year, every month was something. I had left temporol lobe scar tissue which caused me to have 2 to 10 seisures every day. Im 54 years old now, I had the surgery 7 weeks ago. I was a little scared to have it done also, but it was the best thing i ever had done . Im now on day 51 that I ve had no siesures. I was told my possibilty of being seisure free was also 70 plus percent. They told me all the things that could go wrong to. Which nothing did. As a matter of fact i was up and back to normal in 2 days. they tell you about the things that can happen only because its possible, but the possibilty is very little. I do have a little bit of short term word search, names of people, other than that every thing is very good. Have great faith in god that he will take care of your daughter for you. I wish you the best. John
Good afternoon , I did have epilepsey seisures for 5 years, they started when i was 49 years old, I had many test over the last year, every month was something. I had left temporol lobe scar tissue which caused me to have 2 to 10 seisures every day. Im 54 years old now, I had the surgery 7 weeks ago. I was a little scared to have it done also, but it was the best thing i ever had done . Im now on day 51 that I ve had no siesures. I was told my possibilty of being seisure free was also 70 plus percent. They told me all the things that could go wrong to. Which nothing did. As a matter of fact i was up and back to normal in 2 days. they tell you about the things that can happen only because its possible, but the possibilty is very little. I do have a little bit of short term word search, names of people, other than that every thing is very good. Have great faith in god that he will take care of your daughter for you. I wish you the best. John
Re: Temporal lobe surgery
Submitted by a_mkelly2000 on Sun, 2009-08-16 - 06:50
Thank you Karl for taking the time to response to me. Your story made me feel much more confident in my daughters upcoming surgery and in the decision that we have made on her behalf. Thank you again xo