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Temporal lobe surgery

Tue, 07/28/2009 - 03:05

Hello to everyone who lives with and loves a person with uncontrolled epilepsy.

My beautiful 9 year old daughter is due to have surgery on the 29th of Sept 2009. Whilst we are excitied about the prospect of, 70% chance of becoming seizure free - we are concerned about the issue of stroke associated with the surgery. 

Has anyone experienced negative effects of the surgery? 

Concerned mother. Regards, Anne-Marie  

 

 

Comments

Re: Temporal lobe surgery

Submitted by colemcco on Tue, 2009-10-06 - 23:57

Hello.  I am 27 years old and scheduled for surgery in November.  I am absolutely terrified.  I live alone so it is one of the reasons surgery is a good option for me since I don't have anyone here to help me when I have seizures. 

Do you have ANY regrets at all with the surgery?  How bad are the headaches?  How has your mood been affected?  Also, how bad are the scars?  I am going to have a left temporal lobectomy.  Are there any "deformitites" after the surgery?  The reason I ask is I have read on another website that someone had a "dip" in the shape of his head after the surgery.  He could have made this up to get attention, but I want to ask anyway.  Thanks.

Please email me at colemcco@gmail.com

I really look forward to hearing your stories.

Hello.  I am 27 years old and scheduled for surgery in November.  I am absolutely terrified.  I live alone so it is one of the reasons surgery is a good option for me since I don't have anyone here to help me when I have seizures. 

Do you have ANY regrets at all with the surgery?  How bad are the headaches?  How has your mood been affected?  Also, how bad are the scars?  I am going to have a left temporal lobectomy.  Are there any "deformitites" after the surgery?  The reason I ask is I have read on another website that someone had a "dip" in the shape of his head after the surgery.  He could have made this up to get attention, but I want to ask anyway.  Thanks.

Please email me at colemcco@gmail.com

I really look forward to hearing your stories.

Re: Temporal lobe surgery

Submitted by melyc on Fri, 2010-12-03 - 08:39

I started to get seizures when I was 18, for no apparent reason. I was on several different medications from 18-22 and nothing would control the seizures. When I was 22 years old, I had a left temporal lobectomy and since then I have had only 3 seizures. I have gotten my drivers license and I have been completley seizure free for the last 3 years. I am still on 400mg of Tegretol, however that is a LOT less than what i was on before the surgery.

 The headache after the surgery was extremely painful...but I think a couple days of pain was definetly worth it because I now have a drivers license and I am completley independent and seizure free and I am 31. There were no problems with the shape of my head or anything like that. I finished college and struggled through college but, I ended up being successful with a masters degree after the surgery. I am not sure if I would have been able to do that if I didn't have this surgery to treat my epilepsy. It has definetly been the best decision I ever made, I have no regrets at all! Very thankful every day for the surgery to treat my epilepsy!

 Feel free to let me know if you have any questions!

I started to get seizures when I was 18, for no apparent reason. I was on several different medications from 18-22 and nothing would control the seizures. When I was 22 years old, I had a left temporal lobectomy and since then I have had only 3 seizures. I have gotten my drivers license and I have been completley seizure free for the last 3 years. I am still on 400mg of Tegretol, however that is a LOT less than what i was on before the surgery.

 The headache after the surgery was extremely painful...but I think a couple days of pain was definetly worth it because I now have a drivers license and I am completley independent and seizure free and I am 31. There were no problems with the shape of my head or anything like that. I finished college and struggled through college but, I ended up being successful with a masters degree after the surgery. I am not sure if I would have been able to do that if I didn't have this surgery to treat my epilepsy. It has definetly been the best decision I ever made, I have no regrets at all! Very thankful every day for the surgery to treat my epilepsy!

 Feel free to let me know if you have any questions!

Re: Temporal lobe surgery

Submitted by kjbosman on Sun, 2009-08-09 - 13:05

Hello Anne-Marie,

 I myself has had epilepsy for 29 years, and I am only 30 years old.  It started when I was 9 months old.  As life got harder and harder for me, I finally decided for the brain surgery, and mine dealth with the left temperol lobe.  I was told that my short-term memory could be affected, but it turned out that for only 1 month or so, the only things I would forget is what I was talking about if I was interupted.  Other than that, I remembered everything, including right after my surgery.  I was told I would forget everything for 24-48 hours after surgery, but once my mother first went to visit me after surgery, I remembered today's date, and the page she was on before me entering surgery.  Everything went fantastic.  Now, with it being almost 9 months later, I have still been seizure free from my surgery.  I just made sure I had lots of faith in my surgeon.

 If you wish for any assistance, I will do anything I can to help.

Karl

Hello Anne-Marie,

 I myself has had epilepsy for 29 years, and I am only 30 years old.  It started when I was 9 months old.  As life got harder and harder for me, I finally decided for the brain surgery, and mine dealth with the left temperol lobe.  I was told that my short-term memory could be affected, but it turned out that for only 1 month or so, the only things I would forget is what I was talking about if I was interupted.  Other than that, I remembered everything, including right after my surgery.  I was told I would forget everything for 24-48 hours after surgery, but once my mother first went to visit me after surgery, I remembered today's date, and the page she was on before me entering surgery.  Everything went fantastic.  Now, with it being almost 9 months later, I have still been seizure free from my surgery.  I just made sure I had lots of faith in my surgeon.

 If you wish for any assistance, I will do anything I can to help.

Karl

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