Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Temporal lobe surgery
Tue, 07/28/2009 - 03:05Hello to everyone who lives with and loves a person with uncontrolled epilepsy.
My beautiful 9 year old daughter is due to have surgery on the 29th of Sept 2009. Whilst we are excitied about the prospect of, 70% chance of becoming seizure free - we are concerned about the issue of stroke associated with the surgery.
Has anyone experienced negative effects of the surgery?
Concerned mother. Regards, Anne-Marie
Comments
Re: Temporal lobe surgery
Submitted by ahardway on Fri, 2009-07-31 - 15:18
Hi Anne-marie.
I am 27 years old and also had surgery done to my Left Temporal Lobe. I was diagnosed with e right after I turned 24 (I will be 28 here on August 2). My surgery was done in November 2008 and so far things have been looking great. In fact, my last seizure was last September 2008. After my surgery I was put in the Epilepsy Monitoring unit at my local hospital for about 4 days while I was recovering to make sure things looked great before they took my bandages off. 2 weeks after my surgery I had an MRI done and then a meeting with my surgeon who told me that everything looked great before he took my stitches out. I did however, take the min. 6 week recovery period before I went back to wokr to be on the safe side. The worst thing that I had was that I did have headaches and felt dizzy a few times during that period but all i had to do was take a tylenol or take a nap and I was fine. I was also on a few pain meds for the first couple of weeks but only as needed since they were very strong and could be the addictive types. Since then, I have had 2 more MRI's and just last month I met up with a neuropshychologist to check my short term memory to see if there was any difference in it since the left was very slightly stronger than my right. However, it was just my extremley short term memory that was nothing to be real concerned about. I wish your daughter the best of luck! God Bless!
Hi Anne-marie.
I am 27 years old and also had surgery done to my Left Temporal Lobe. I was diagnosed with e right after I turned 24 (I will be 28 here on August 2). My surgery was done in November 2008 and so far things have been looking great. In fact, my last seizure was last September 2008. After my surgery I was put in the Epilepsy Monitoring unit at my local hospital for about 4 days while I was recovering to make sure things looked great before they took my bandages off. 2 weeks after my surgery I had an MRI done and then a meeting with my surgeon who told me that everything looked great before he took my stitches out. I did however, take the min. 6 week recovery period before I went back to wokr to be on the safe side. The worst thing that I had was that I did have headaches and felt dizzy a few times during that period but all i had to do was take a tylenol or take a nap and I was fine. I was also on a few pain meds for the first couple of weeks but only as needed since they were very strong and could be the addictive types. Since then, I have had 2 more MRI's and just last month I met up with a neuropshychologist to check my short term memory to see if there was any difference in it since the left was very slightly stronger than my right. However, it was just my extremley short term memory that was nothing to be real concerned about. I wish your daughter the best of luck! God Bless!
Re: Temporal lobe surgery
Submitted by stephanieev on Fri, 2011-02-18 - 17:35
Hello MDC,
God to see you are doing well and had a sucessful operation. Hoping it goes the same for my hubby. You said the doc said you may have a seizure after surgery. have not heard that. Well my hubby is scheduled next month for a tumor removal removal. Did you have a tumor removed? if so what type?
awsome that you are helping children with special needs also. I run a special needs activity group and i have a son with Muscualr Dystropy. I know tons aonout special needs. Need help with anything, let me know.
My husband Bryan was diagnosed with a Ganglioglioma Tumor two months ago. He is choosing to remove the tumor in the left Temporal Lobe and is scheduled for the 8th of March for a Awake Brain Surgery. Hoping he will also be seizure free and will not have to take meds. He has had his seizures for 20 years and NEVER been on medication until this month. They are really making him have lots of icky symtoms. He has tried the Lamotrigine and the Zonegran so far. Doc says he wants my husband to be on something during his surgery so he is going to try a different med. very frustrating. He only has the Partial Complex Seizures. He cannot communicate or understand language for a couple of minutes and gets tired after. He is fully aware and consious when having one.
Any pointers or questions we should ask the suergon or your Neurologist are appreciated. Medicine advice and your experiences are useful. Advice on surgery and post op and pre op are also needed. I want to be prepared for my hubby. I am the research nut as I learned to be 14 years ago as my son has a rare form of Muscular Dystrophy. I do all the medical research and only looking out for the best interest of my husband and our family.
Thank you so much for your help and support through this difficult time
Stephanie V
Hello MDC,
God to see you are doing well and had a sucessful operation. Hoping it goes the same for my hubby. You said the doc said you may have a seizure after surgery. have not heard that. Well my hubby is scheduled next month for a tumor removal removal. Did you have a tumor removed? if so what type?
awsome that you are helping children with special needs also. I run a special needs activity group and i have a son with Muscualr Dystropy. I know tons aonout special needs. Need help with anything, let me know.
My husband Bryan was diagnosed with a Ganglioglioma Tumor two months ago. He is choosing to remove the tumor in the left Temporal Lobe and is scheduled for the 8th of March for a Awake Brain Surgery. Hoping he will also be seizure free and will not have to take meds. He has had his seizures for 20 years and NEVER been on medication until this month. They are really making him have lots of icky symtoms. He has tried the Lamotrigine and the Zonegran so far. Doc says he wants my husband to be on something during his surgery so he is going to try a different med. very frustrating. He only has the Partial Complex Seizures. He cannot communicate or understand language for a couple of minutes and gets tired after. He is fully aware and consious when having one.
Any pointers or questions we should ask the suergon or your Neurologist are appreciated. Medicine advice and your experiences are useful. Advice on surgery and post op and pre op are also needed. I want to be prepared for my hubby. I am the research nut as I learned to be 14 years ago as my son has a rare form of Muscular Dystrophy. I do all the medical research and only looking out for the best interest of my husband and our family.
Thank you so much for your help and support through this difficult time
Stephanie V