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Nocturnal seizure... what is it?!
Tue, 07/24/2007 - 22:24Hi all
I am new to this forum, and just stumbled across it while trying to search for an explanation of something that happened to me. So my story is...
I was on holiays, so was fairly tired after a flight from Australia to New York. I fell asleep around 1:00am and my boyfriend woke up to me at 2:00am having a seizure. Apparently i looked like i was being possessed (charming, i know!). Basically it wasnt jerky movements, but i just lost control of every body movement - i wet the bed, my face muscles had gone all droopy, I couldnt talk except to slur a little bit, and I couldnt sit up. I woke up to the ambulance guys, then within 5 minutes I realised where I was and was starting to be able to speak again and by the time i was in the emergency room, within maybe 20 mins, I was fully functional again.
My MRI and CT scans came back totally clear and the neurologist said that it must have been a random seizure (ie he could see no reason for it except possibly exhaustion). My family has a long history of strokes but the doctors said this wasnt a stroke.
Does anyone know if this sounds like a type of epilepsy?? If anyone could give me ANY info that would be great. Anyone with a similar story etc.
Thank you so much in advance!!
alana
Comments
Re: Nocturnal seizure... what is it?!
Submitted by karend03 on Thu, 2007-09-13 - 17:39
I have had seizures since I was a child, and they always seemed to come in clusters (3-7 seizures over a period of 3 or 4 days). The first one always happened in my sleep, so that gave me a warning to take it easy for a few days. If I went 2 days without having a seizure, I knew they were over with until the next month. Sometimes I would wet the bed and sometimes not.
Re: Nocturnal seizure... what is it?!
Submitted by dalaina on Wed, 2009-07-29 - 21:41
Hi, what you had to say really got to me. I am 40 years old and started having nocturnal seizures when I was 18. I have never had a seizure when I was awake (thank god). And I did not know that this was such a common event. I have never met anyone else who has had Nocturnal Seizures. I have been seeing a nurologist since I started having them and had countless tests done but never found anything wrong. Its very frustrating. I was on dylanton for many years than taken off and switched to TOPAMAX which I agree doesnt seem to work. I fineally took myself off because my nurologist wasnt listening to me that the meds were making things worse. All he seemed to be concerned about was if I was exercising?? Anyway since I had gone off the meds I have had 2 in the past year. What scares me though is what you said about having more and more intense from menopause. Truthfully I dont think the nurologists know even half of what they claim to know. What I know is they are scary and I am tired of being told Nothing is wrong!!! And I am also tired of taking medication that doesnt work.
Hi, what you had to say really got to me. I am 40 years old and started having nocturnal seizures when I was 18. I have never had a seizure when I was awake (thank god). And I did not know that this was such a common event. I have never met anyone else who has had Nocturnal Seizures. I have been seeing a nurologist since I started having them and had countless tests done but never found anything wrong. Its very frustrating. I was on dylanton for many years than taken off and switched to TOPAMAX which I agree doesnt seem to work. I fineally took myself off because my nurologist wasnt listening to me that the meds were making things worse. All he seemed to be concerned about was if I was exercising?? Anyway since I had gone off the meds I have had 2 in the past year. What scares me though is what you said about having more and more intense from menopause. Truthfully I dont think the nurologists know even half of what they claim to know. What I know is they are scary and I am tired of being told Nothing is wrong!!! And I am also tired of taking medication that doesnt work.