Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

When are hallucinations actually seizures?

Sun, 07/26/2009 - 11:49
I visited my neurologist last Friday and told him about these small flashes of light that have been occurring in my eye since I have been diagnosed with Epilepsy, which has been about 25 years now. He told me "They might be seizures." However, he didn't tell me anything else. Does anybody else have this problem and would anybody else know more about it? It usually happens before I have a big tonic-clonic seizure, so I take it as a sign that I have to lie down. What about everyone else? Or am I crazy?

Comments

Re: When are hallucinations actually seizures?

Submitted by 3Hours2Live on Thu, 2009-07-30 - 05:31
Hi MichaelK, Migraines don't run in my family. From the books/articles I've researched, the rule of thumb for differentiating between migraines with auras and seizures is the 5 minute rule: More than 5 minutes, call it a migraine; Less than 5 minutes, call it a seizure; About 5 minutes, call it migralepsy (especially if a definite seizure follows within one hour). Many references try to restrict migralepsy to only migraine-triggered seizures: http://emedicine.medscape.com/article/1142731-overview The definition of consciousness, when it is given by the sources using the word, varies so much, it makes it very difficult, if not impossible, to use it as a valid and objective concept. Like the dividing line between simple partial seizures and complex partial seizures, using alterations in levels of consciousness to distinguish between seizures and migraines creates paradoxes. But using the 5 minute rule creates paradoxes as well, because of the possibility of a series of quickly repeating partial seizures, and/or status epilepticus of partial seizures, or just longer than normal seizures. I've only had one eeg and one MRI (mounted in a mobile truck trailer, which greatly reduces precision). Both of these, for me, came back as normal, but my neurologist asked me if I would agree to brain surgery to stop my seizures anyway. I guess if I was willing, I might have received repeated and more precise eeg's and MRI's. For one thing, originating causes like hippocampal sclerosis (and many other causes), can be detected in 90% of such cases, but the other 10% require more heroic detection techniques: http://www.pubmedcentral.nih.gov/picrender.fcgi?artid=2686888&blobtype=pdf pages 3 - 4. This article also mentions sources of errors not usually considered in regular MRI's, errors that easily hide the source, and presence, of true seizures, both in terms of better diagnostics and more precise surgeries.

Re: When are hallucinations actually seizures?

Submitted by tonialpha on Sun, 2009-07-26 - 22:10
When I first had seizures when I was 13 I had flashing lights that made me sick to my stomach and I wanted to throw up.  When I took microbiology I saw it under the microscope and I was able to describe it in detail to the Neurologist as mitochondria.  He laughed and told me to stop acting like a nurse. It grows and pulsates.  Some people have migraine w/ it and some have seizures w/ it.  It depends on the focus.  My focus is on the fourth ventricle.  Every one is different.  I was hoping mine was simple.  Some focuses are on the temporal lobe only, it varies from patient to patient.  Some patients just have headaches.  I hope you an MRI, blood test and an EEG and find out where your problem is.  Take care.

Re: When are hallucinations actually seizures?

Submitted by MichaelK on Tue, 2009-07-28 - 12:07
I have had multiple EEGs, MRIs, blood tests, and CAT scans, all showing that I am a normal person. Yet I have flashing lights and/or hallucinations in the side of my field of vision. As you said, "Every one is different." My doctor has been focusing, unsuccessfully, on my temporal lobe. My seizures seem to originate, though, from the back of my head, at least that is what I feel. What 3Hours said below makes me wonder if there hasn't been a misdiagnosis due to misinformation. I will talk more with my neurologist soon. Thanks for your help.

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.