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Can you be conscious for a grand mal seizure/tonic-clonic?

Tue, 07/07/2009 - 19:52

A few weeks ago, at the age of 22,  I was diagnosed with epilepsy. I have had mainly focal epileptic seizures but recently suffered from a second tonic-clonic seizure in a month.

I was asleep and it was late at night for the first tonic-clonic seizure and I was at the hospital for EEG testing as well as video monitering.

During the second, it was late afternoon, I had suffered from two seizures that day and then after dozing off around 5:30, awoke to my neck turning almost all the way around and my arms twitching, then my body, and then my legs. I rememeber the entire thing... gasping for air and almost losing consiousness. I am currently taking 1500 mg. of Keppra and now will be increasing this dosage to 3000 mg.

I am 22, in perfect health... and now dealing with all of this. It is my knowledge that people that have grand mal seizures or tonic-clonic seizures, lose consciousness. Am I having some sort of different seizure, or what?!?! So confused...

Comments

This really helped me

Submitted by KathleenBradley on Thu, 2019-07-25 - 01:14
This really helped me understand whats happening to me! I cant thank you enough!

Re: Can you be conscious for a grand mal seizure/tonic-clonic?

Submitted by wyboemail on Wed, 2009-07-08 - 08:43

My 10 year old son had his first seizure at age 8 and he recalled everything that was going on. He said how I was on the phone with 911 and that Mom was running around like a crazy woman. What broke my heart was the that he said to us the next day that he thought he was dying. He was aware of what was going on during his TC so I would say that yes it is possible. Other times he has not remembered.

My 10 year old son had his first seizure at age 8 and he recalled everything that was going on. He said how I was on the phone with 911 and that Mom was running around like a crazy woman. What broke my heart was the that he said to us the next day that he thought he was dying. He was aware of what was going on during his TC so I would say that yes it is possible. Other times he has not remembered.

Re: Can you be conscious for a grand mal seizure/tonic-clonic?

Submitted by tweety 12 on Wed, 2009-07-08 - 19:00

when i had mine i didnt really lose constioness but was on aware of everything aroulnd me and anyone around me even my family ive had 4 grand mals since last nove im 31 and was told i had epilepsy

when i had mine i didnt really lose constioness but was on aware of everything aroulnd me and anyone around me even my family ive had 4 grand mals since last nove im 31 and was told i had epilepsy

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