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PNES- NON EPILEPTIC SEIZURES

Wed, 11/12/2008 - 17:45
  Hello there. I just wanted to know if there is anyone that is living with pnes... My sister has been told she has this and it is very confusing. I have done some research on this condition..but would like to hear from anyone who has this.  I just have some questions about his condition.. right now my sister is in the hospital and i amjust trying to gain a better understanding for her and us.. Thank you..edie

Comments

Re: PNES- NON EPILEPTIC SEIZURES

Submitted by nvirden on Wed, 2009-06-24 - 11:25
I mentioned this in another area -- but there is a WONDERFUL article in NEUROLOGY NOW (Nov/Dec 2008) "The Seizures No One Wants to Talk About"  -- My daughter diagnosed with this (along with Epilepsy because of brain damage with spinal meningitis at age 5 months -- she is now 45) It is DEFINITELY a real issue -- and I too was wondering if others out there with this.  The only way it can be diagnosed is through seizure monitoring (continuous video-EEG monitoring).  My daughter had about 35 seizures the week she was monitored and 30 of them showed NO change in brain waves and we could see her having the seizures.  I was amazed!   

Re: PNES- NON EPILEPTIC SEIZURES

Submitted by griz550 on Thu, 2009-07-02 - 18:10
I have been reading about PNES, I have been dealing with seizuers for over 4 months now, I have been through MRI's EEG's and Video with EEG, and they said it was a non eptilepitc event, gave me some anit depressents and said bye bye and sent me back to my regular doctor.  He said he had no idea what to do my test came back ok the blood pressure was holding ok, no blocked arterys no epilepsy, no tumors nothing, so he didnt know, but want you to keep taking the  topiramate to control the seizures and go ahead and seek out another doctor who might know something. I have read  about PNES and it seems to speak alot towards  my events  I called and asked for a referal to a doctor at the university hospital but no calls back as of yet, now part of this is I am not allowed to work because of the seizures but the doctor doesnt seem to find anything wrong, the other doctor left his practice, the other doctor hasnt returned calls, some of my family members seem to think I am just playing games and others are worried and I cant seem to find out what is wrong with me, I know something is wrong, and I cant get anyone to notice or something. I have one month left of sick leave and I loose my job if I cant return to work, I cant get my medical retirement because the doctor doesnt know  what is wrong and doesnt know what to say to them, the siezures happen when ever they feel like it, I cant drive because I dont know when they will happen.

Re: PNES- NON EPILEPTIC SEIZURES

Submitted by iraq on Sat, 2009-09-26 - 13:17

http://professionals.epilepsy.com/page/ar_1116430870.html

Go to this link, my husband has PTSD from 3 tours in combat and his treatment is valium and psychiatry etc.

http://professionals.epilepsy.com/page/ar_1116430870.html

Go to this link, my husband has PTSD from 3 tours in combat and his treatment is valium and psychiatry etc.

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