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Vimpat

Tue, 05/12/2009 - 21:33

Has anyone tried Vimpat yet?  If so, will you share your experiences with it (good and bad), decision to take it or not, etc.?  My doctor wants me to switch to it.  Thanks so much!

Comments

Re: Vimpat

Submitted by daj on Thu, 2009-06-11 - 20:55
Thanks for the reply, Spar, and congrats and your improvement!  Best to you, daj

Re: Vimpat

Submitted by mkfarnam SB Cal on Tue, 2009-06-16 - 21:33

I have been taking Dilantin for many years. I've takin it so long that I have been able to adjust my other medication( Phenibarbital and Mysoline)  down to where it's do longer needed. With 400mg of Dilantin a day, my seizures are completely under control. If any dr, tries to switch meds on me and cut me off of Dilantin , I will file a law suit against them for "endangerment". They have all been informed of this.

This change was from 1320mg a day to 400mg aday and it took me about 2-3 years and without DR's orders.

For years people that didn't know me assumed I was a drug addict because I looked so doped up,including the Police. Now no one knows I'm Epileptic unless I tell them.

I had my share of being used as a guinea pig in my younger days.

I am still interesrted in how this new medication turns out with others.

I have been taking Dilantin for many years. I've takin it so long that I have been able to adjust my other medication( Phenibarbital and Mysoline)  down to where it's do longer needed. With 400mg of Dilantin a day, my seizures are completely under control. If any dr, tries to switch meds on me and cut me off of Dilantin , I will file a law suit against them for "endangerment". They have all been informed of this.

This change was from 1320mg a day to 400mg aday and it took me about 2-3 years and without DR's orders.

For years people that didn't know me assumed I was a drug addict because I looked so doped up,including the Police. Now no one knows I'm Epileptic unless I tell them.

I had my share of being used as a guinea pig in my younger days.

I am still interesrted in how this new medication turns out with others.

Re: Vimpat

Submitted by daj on Wed, 2009-06-17 - 12:51

I had great seizure control for many years on Dilantin 400 mg daily--and a "normal," active, productive life!  A nocturnal seizure once every five years or so.  I went to a general neurologist then, who thought I should switch meds (to Tegetrol XR) rather than increase the Dilantin when I started getting more frequent seizure activity.  A few years later, she recommended I switch to Trileptal for even better seizure control.  That only lasted for a couple of years, so at that point, she recommended that I go to an epileptologist.  Then the merry-go-round/roller coaster of new meds began and now, to borrow your words, I look like a doped up drug addict.  And no seizure control.  Now I'm basically housebound.      

When I agreed to try Vimpat, I told my epileptologist that if Vimpat doesn't work out, I want to try to back to Dilantin.     

Congrats that your seizures are completely under control and thanks so very much for sharing your experience, and for the validation and encouragement!  All the best to you, daj  

 

   

 

I had great seizure control for many years on Dilantin 400 mg daily--and a "normal," active, productive life!  A nocturnal seizure once every five years or so.  I went to a general neurologist then, who thought I should switch meds (to Tegetrol XR) rather than increase the Dilantin when I started getting more frequent seizure activity.  A few years later, she recommended I switch to Trileptal for even better seizure control.  That only lasted for a couple of years, so at that point, she recommended that I go to an epileptologist.  Then the merry-go-round/roller coaster of new meds began and now, to borrow your words, I look like a doped up drug addict.  And no seizure control.  Now I'm basically housebound.      

When I agreed to try Vimpat, I told my epileptologist that if Vimpat doesn't work out, I want to try to back to Dilantin.     

Congrats that your seizures are completely under control and thanks so very much for sharing your experience, and for the validation and encouragement!  All the best to you, daj  

 

   

 

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