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How exactly do aura's feel

Mon, 05/15/2006 - 11:30
How exactly do aura's feel? Can you have aura's and not have an actual seizure? I think I had some this weekend. I went off into like a "spacy" feeling. Like I was tingling and I couldn't make myself snap out of it for a few seconds. I have had a headache since I has these feelings. I have had E a long time, but I am new to all the terminology and so forth. Thanks.

Comments

Re: Re: How exactly do aura's feel

Submitted by groovyjoker on Fri, 2006-09-15 - 17:24
We can see here that auras are our best tool to helping us predict when our seizures are coming. I am so grateful that I often had auras. I know many people out there do not have this tool. My worse seizures were without warning. With an aura, which for me was a feeling of "doom" or "deja vu" that slowly rose from the pit of my stomach and overwhelmend me, I always had enough time to lie down. Sometimes I had to wait 5 minutes for the seizure, other times, two days, but my auras were 80% accurate - they predicted a partial complex or generalized.

Re: How exactly do aura's feel

Submitted by dmh on Tue, 2006-09-19 - 15:02
Hi WendyBendy, I have been having the partial and complex partial seizures since I was 9 years old and I definitely have an aura too. My heart starts racing and I get a terrible feeling of fear over me that I just can't get rid of. Even though I am now 44 and try to tell myself it is just a seizure (as solis said, and I myself didn't learn until this year) there is nothing I can do to stop it. Sometimes I feel like the aura's (the partial seizures) are worse than my complex seizures themself because all that happens then is I black out for about 5 minutes, I can't speak or comprehend anything until I come out of it and I can't remember anything. That feeling of fear that I have before I go blank is horrible. I have definitely learned a lot from all of the people here on the my.epilepsy.com and I want you to know I wish you the best. Write back any time, Dawn ;-)

Re: How exactly do aura's feel

Submitted by jbat1212 on Fri, 2009-06-05 - 09:43

Hi everyone.

I can relate to so many of these stories and though I wouldn't wish this on anyone it does comfort me to know I'm not alone.  I have simple  partials and have never had a tc. but lately they have been getting stronger and lasting longer.  Mine start the same way every time with this little jolt feeling and then I start getting the most awful fear and dread feeling and also the sense of being on a roller coaster going up and down with the drop in your stomach feeling.  I feel very light headed and out of body sensation is going on.  I have been having these for a little over 2 years now, I am on Lamictal and they stopped for about a year.  Now they are back with a vengence, lasting anywhere from a few to 10 min. where as before they lasted 30 to 45 seconds.  I feel so worn out and scared another one might be right around the corner, it seems awhile before I can get my heart to stop racing.  Sorry for rambling on so long, it just feels good to share.

Hi everyone.

I can relate to so many of these stories and though I wouldn't wish this on anyone it does comfort me to know I'm not alone.  I have simple  partials and have never had a tc. but lately they have been getting stronger and lasting longer.  Mine start the same way every time with this little jolt feeling and then I start getting the most awful fear and dread feeling and also the sense of being on a roller coaster going up and down with the drop in your stomach feeling.  I feel very light headed and out of body sensation is going on.  I have been having these for a little over 2 years now, I am on Lamictal and they stopped for about a year.  Now they are back with a vengence, lasting anywhere from a few to 10 min. where as before they lasted 30 to 45 seconds.  I feel so worn out and scared another one might be right around the corner, it seems awhile before I can get my heart to stop racing.  Sorry for rambling on so long, it just feels good to share.

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