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New Here: First Seizure Questions: Adult onset?

Thu, 05/22/2008 - 23:46

Hi, New here: A little background 1st:
I had my 1st seizure about a few weeks ago. My husband called 911 when he woke up to hear me making sounds and struggling. He said I was jerking, eyes rolled back, moving everywhere, not responding, no clue he was there. I didn't respond to 4 paramedics, an ambulance ride. When I came around I didn't know where I was and my tongue was bit up. I couldn't hardly talk. My blood sugar was very low and I had a headache on the left side of my head. I did not know where I was which caused hyperventilation. With not one around, not memory of what happened. My husband was still at home waiting to come and have someone stay with the kids. Once we were all settled and my husband could get there and tell what happened, I got the full work up. MRI, EEG you name it they did it. I stayed at the hospital for 2 days. My EEG spiked and I had a seizure with that. So Complex Partial Seizure left frontal lobe with secondary generalization. I did a sleep study, results soon. On Depakote, no driving for 6 months. I have had simple partial seizures after the hospital visit.
My son has seizures as well and on Depakote/Tegretol. He had a stroke at birth so they say my seizure and his seizures are not related. His is due to brain injury at birth. The Dr. feels that I am under stress...well yea stay at home mom to a boy that had a stroke, not to mention other stuff. The Dr. said stress triggers seizures. They said I could be having tiny seizures in my sleep then the big one the other day.
Questions:
Many of my friends are asking me if adult onset seizures are common? I forgot to ask the Dr.
Will this be the last big one? Or more to come? If I have another one the 6 month driving starts over so did some of you not drive for a year?
I am depakote and they will raise it up to the right dose for me gradually. I am bit overweight anyway....I heard it makes you gain??
If my sleep study comes back saying I have sleep apnea which caused the seizure, won't a cpap machine help and I really don't have a seizure disorder??
Thanks for reading!

 

Comments

Re: New Here: First Seizure Questions: Adult onset?

Submitted by VictoriaMae on Wed, 2009-05-20 - 21:11

Hey everyone.  I am 23 years old and I had my first seizure on June 25, 2007 (I think).  I was home alone, and I found myself acting very strange all of the sudden and feeling quite wierd.  I was doing things that just didn't make sense and I don't know why.  The man I was dating at the time came home to find me still acting a little strange.  He was a bit worried so he took me to the Emergency Room where they ran test after test after test.  Each and every single one came out just fine.  Nothing at all was abnormal.

My second was July 26, 2008; almost exactly a year later.  This one was caught on camera in my office.  I, again, started to feel wierd.  So I sat back in my chair at my desk.  The next thing I know, I woke up in one of the tanning beds drizzled with blood.  I went back into my office and called my boss and told her I didn't know what happened and that I'd woken up in the tanning bed covered in blood.  She told me to sit tight and she'd be right here.  She took me to the ER, but not before she had to pull over twice so I could throw up.  My parents arrived at the hospital with me, so my boss left to come back to the office to watch the cameras.  She called me and told me that I'd fallen out of the chair and had a seizure.  I was stunned.  I couldn't believe it.  She said I'd gotten up from the ground after I'd stopped seizing and stumbled into the tanning bed.  I don't remember any of it.  Every single test, again, was perfectly normal.  The blood work, EKG, EEG, CT Scan, etc. everything was just as it should be. 

Just a couple days ago (Monday, May 18th 2009), I had yet another one.  This time, thank goodness, I'd been in the middle of a conversation with a friend.  The last thing I remember is telling him that I felt really wierd all of the sudden.  Not 30 seconds later, I hit the floor and began seizing violently.  He immediately called for an ambulance and they transported me to the ER.  And once again, every test was just as it should be. 

I don't know what to think of all this.  I'm not going through withdrawls from drugs or alcohol.  I haven't had any major life changing events (other than the seizures) to disrupt my life.  I wasn't in a car accident.  I haven't been struck in the head (or anywhere for that matter)...  I don't know why this is happening.  Anybody have any insight? 

Hey everyone.  I am 23 years old and I had my first seizure on June 25, 2007 (I think).  I was home alone, and I found myself acting very strange all of the sudden and feeling quite wierd.  I was doing things that just didn't make sense and I don't know why.  The man I was dating at the time came home to find me still acting a little strange.  He was a bit worried so he took me to the Emergency Room where they ran test after test after test.  Each and every single one came out just fine.  Nothing at all was abnormal.

My second was July 26, 2008; almost exactly a year later.  This one was caught on camera in my office.  I, again, started to feel wierd.  So I sat back in my chair at my desk.  The next thing I know, I woke up in one of the tanning beds drizzled with blood.  I went back into my office and called my boss and told her I didn't know what happened and that I'd woken up in the tanning bed covered in blood.  She told me to sit tight and she'd be right here.  She took me to the ER, but not before she had to pull over twice so I could throw up.  My parents arrived at the hospital with me, so my boss left to come back to the office to watch the cameras.  She called me and told me that I'd fallen out of the chair and had a seizure.  I was stunned.  I couldn't believe it.  She said I'd gotten up from the ground after I'd stopped seizing and stumbled into the tanning bed.  I don't remember any of it.  Every single test, again, was perfectly normal.  The blood work, EKG, EEG, CT Scan, etc. everything was just as it should be. 

Just a couple days ago (Monday, May 18th 2009), I had yet another one.  This time, thank goodness, I'd been in the middle of a conversation with a friend.  The last thing I remember is telling him that I felt really wierd all of the sudden.  Not 30 seconds later, I hit the floor and began seizing violently.  He immediately called for an ambulance and they transported me to the ER.  And once again, every test was just as it should be. 

I don't know what to think of all this.  I'm not going through withdrawls from drugs or alcohol.  I haven't had any major life changing events (other than the seizures) to disrupt my life.  I wasn't in a car accident.  I haven't been struck in the head (or anywhere for that matter)...  I don't know why this is happening.  Anybody have any insight? 

Re: New Here: First Seizure Questions: Adult onset?

Submitted by Randomguy101 on Mon, 2009-05-25 - 02:29
Your story sounds pretty similar to ours. I woke up one morning to banging in the other room. Found my wife have a tonic clonic on the ground and I had no clue what was happening. I called 911 and they took her to the ER. After a bunch of tests (MRI was the main one that found it) she was diagnosed with periventricular heterotopia (PH) on the right ventricle only which can cause seizures. Her first seizure ever was last month and she is 26 so she also has adult onset. I don't think adult onset is that uncommon. Supposedly PH usually starts causing seizures in the teenage years. Doc has started her on Lamictal and Keppra and she has been seizure free for the last month so that is good. We are trying to get at least 8 hours of sleep a night and are not drinking much alcohol at all. Just know you are not alone in what you are going through. This is a great forum to learn about epilepsy.

I have had the same thing

Submitted by Anonymous on Thu, 2014-09-11 - 15:47
I have had the same thing happen to me . My eyes and vision were jerky  felt faint but that's all. I had seizure 5 months ago cant drive for an0ther month

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