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Name the BEST pediatric epilepsy dr/hospital - we will go ANYWHERE!

Thu, 09/07/2006 - 19:54
I am searching the world for the best pediatric epilepsy doctor or hospital for my 10 yr old son. We have been to MN, OH, and 3 different hospitals in Chicago,IL. All of them take on my son's case & then ignore us when things dont get any better. They talk of surgery, but dont set up the necessary tests - I call them repeatedly since hes not doing better, hes worse - they increase his medicine, it does nothing, they do nothing. They rarely return my calls - in the meantime, my son suffers, his schooling suffers, his social life suffers. PLEASE - can anyone recommend the best dr out there for him? I will go ANYWHERE - plane, train, automobile - my son has right frontal lobe intractable epilepsy with complex partial seizures. he also suffers from post-ictal psychosis on a regular basis. Thank you for your help.

Comments

Re: Name the BEST pediatric epilepsy dr/hospital - we will go AN

Submitted by kaileysmom on Sun, 2009-04-05 - 17:55
My daughter Kailey is being treated at Childrens Hosp of Philadelphia - they really are great there,but we are still seeking a second opinion. She was diagnosed with tuberous sclerosis within days of birth, and is now 10 weeks. We spent 6 weeks at CHOP and are so pleased with Dr. Porter our Neurologist, and our consult with Dr Strom the neurosurgeon. The hosp is one of the best in the country and we definitely recommend it. Right now we are looking at a hemispherectomy. Once we get a 2nd opinion and if they agree surgery is best for Kailey's constant subclinical seizures, we will definitely have Sr. Stor perform - he is one of the top pediatric neurosurgeons in the US

Re: Name the BEST pediatric epilepsy dr/hospital - we will go AN

Submitted by CarlySoup on Mon, 2013-04-29 - 13:53
Children's Hospital of Philadelphia is supposed to be the best in the nation, I haven't been but my bosses (neurosurgeons) work with them and also Chicago Children's.

Re: Name the BEST pediatric epilepsy dr/hospital - we will go AN

Submitted by chloech on Mon, 2009-05-18 - 12:00
Try Dr. Jayne Anthony in Westmead Children Hospital in Sydney. I used to see her when I lived in Australia. Good luck! Oh, another one, Dr. Andrew Kornberg. He's in Melbourne but I can't really remember which hospital he's at. Last time I saw him was about 15 years ago. He is very nice and informative.

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