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Normal EEG but continuing seizures
Thu, 04/23/2009 - 13:55Hi,
I have been having e for the past 12-13 years. It was rather well-controlled with medication (phenobarbital) till about 6 to 7 months back, when it started again but with different characteristics. The characteristics changed again about a month back, but my EEG which was sleep-deprived with medication came out to be normal.
Is this possible or could it be because of the mugs of coffee that i had to stay awake? Incidentally, the week i had my eeg, i was seizure free.
Would appreciate if anyone could throw some light on this! :-)
Comments
Re: Normal EEG but continuing seizures
Submitted by vecipriano on Fri, 2009-05-08 - 15:36
I have had E since i was 15 I had only one abnormal EEG when I was a teenager ( I am now 28) My last EEG was about a month ago. it was not sleep deprived. It was normal. two weeks later i had a grand mal. It's very frustrating. I have spoken to my doc about the three day thing but it's very expensive and my insurance would give me a hard time about it. I was controled with depakote for 7 years and then switched to lamictal and had 3 szs in three years. So I am switching to Keppra now. Wish me luck. I do know this though. Your brain very rarely does what you want it to when you want it to. If you get the three day one please post your results and if it's helpful. Good Luck!
Also does anyone know, do the meds cause the activity to stop or do they just make it so that it doesn't effect you?
I have had E since i was 15 I had only one abnormal EEG when I was a teenager ( I am now 28) My last EEG was about a month ago. it was not sleep deprived. It was normal. two weeks later i had a grand mal. It's very frustrating. I have spoken to my doc about the three day thing but it's very expensive and my insurance would give me a hard time about it. I was controled with depakote for 7 years and then switched to lamictal and had 3 szs in three years. So I am switching to Keppra now. Wish me luck. I do know this though. Your brain very rarely does what you want it to when you want it to. If you get the three day one please post your results and if it's helpful. Good Luck!
Also does anyone know, do the meds cause the activity to stop or do they just make it so that it doesn't effect you?
Re: Normal EEG but continuing seizures
Submitted by Amazon on Sat, 2009-05-09 - 03:35
Hi,
Looks like we are in the same boat. Thanks for the post and i hope u are able to get that 3-day thing. Also, in my experience, i feel that the AEDs just supress the seizure activity. the good ones do it without causing too many sideeffects and let u get back to a normal life. but, then again, each med reacts differently to different persons.
Hope this helps. And, best of luck. Thanks for posting.
Take Care,
Amazon
Hi,
Looks like we are in the same boat. Thanks for the post and i hope u are able to get that 3-day thing. Also, in my experience, i feel that the AEDs just supress the seizure activity. the good ones do it without causing too many sideeffects and let u get back to a normal life. but, then again, each med reacts differently to different persons.
Hope this helps. And, best of luck. Thanks for posting.
Take Care,
Amazon
Re: Normal EEG but continuing seizures
Submitted by Amazon on Fri, 2009-05-08 - 13:17
Hi Sifon,
Thanks for the reply. I was really wondering why it would be. Looks like i am not alone.
Best of luck and thanks again.
Take care,
Amazon
Hi Sifon,
Thanks for the reply. I was really wondering why it would be. Looks like i am not alone.
Best of luck and thanks again.
Take care,
Amazon