Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Seizures During Sleep
Wed, 02/11/2009 - 22:16
Hi, I'm new to this site. I have most of my seizures in my sleep or in the morning after waking up.. my last one being two days ago. It seems that either illicit drugs, alcohol or lack of sleep bring most of my seizures on, and I'm working on getting them under control by giving up these things rather than taking my medication, I find the medication Valpro has some bad side effects.
I think my last seizure was a big one becauseI have been a scattered mess since then, I've slept for two days straight now and I have yet to leave the house. I can't think straight so if this doesn't make any sense I hope u understand why. My whole body is aching and my memory is slowly returning.
Anyways I'm almost 25 and I was diagnosed about 2 1/2 years ago.. does anybody else experience sleep related seizures?.. I truly believe if I can get enough sleep I will get my epiliepsy under control.
Thanks for any of your comments.
Comments
Re: Seizures During Sleep
Submitted by Kitten6591 on Tue, 2009-05-19 - 15:55
Re: Seizures During Sleep
Submitted by ChelleInGa on Tue, 2009-05-19 - 19:51
Hi! I started have minor seizures when I was about 11( I am now 26) and up until last year I thought and told everyone even the different neuro's said that that's when I developed them.I had been to about 4 or 5 different neuro's that have said the onset of seizures was due to my stress level during my parents divorce. Well then last year I was finally told that (After my neurologist looked again at all my mri's and CT scans) I've had eplipesy since birth. I am now married and have had many many seizures while I was a sleep. Which has also resulted in about 10-15 shoulder dislocations/per arm almost every seizure I've had while sleeping.
I've been on 4 different drugs since age 11 and finally found that lamictal is working for me.
Hi! I started have minor seizures when I was about 11( I am now 26) and up until last year I thought and told everyone even the different neuro's said that that's when I developed them.I had been to about 4 or 5 different neuro's that have said the onset of seizures was due to my stress level during my parents divorce. Well then last year I was finally told that (After my neurologist looked again at all my mri's and CT scans) I've had eplipesy since birth. I am now married and have had many many seizures while I was a sleep. Which has also resulted in about 10-15 shoulder dislocations/per arm almost every seizure I've had while sleeping.
I've been on 4 different drugs since age 11 and finally found that lamictal is working for me.
Re: Seizures During Sleep
Submitted by kscvrn on Sun, 2009-04-26 - 23:38
Hi, I also experience seizures during sleep. I had my first one at 15 yrs old. I spent the nite with a friend and woke her up shaking her waterbed! I have been on seizure meds since that day. I had a stretch of 6 years w/o any seizures and was on a small dose of 50mg Topamax a day (working to wean it off). However, in Jan. 2007 my boyfriend came in one morning from work and found me confused and with a chunk missing out of my tongue post seizure. I was a night shift nurse and, I too, thought the lack of sleep was a cause for my seizures. Unfortunately, I have been a day shifter for almost a year with no decrease in my seizures. I think it is wise to stop the drugs & alcohol and to make an effort to sleep/eat better. I had to go through many drugs before I found the right combo for me (I've had to do that whole process again since the "relapse" and a new neurologist, since mine left town). It really sucks (to be blunt) to be 25 years old and taking scheduled meds (that stuff is not supposed come til later, right? lol) but if you want to be able to have a quality of life, it's required. Good luck with your epilepsy!