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Seizures During Sleep
Wed, 02/11/2009 - 22:16
Hi, I'm new to this site. I have most of my seizures in my sleep or in the morning after waking up.. my last one being two days ago. It seems that either illicit drugs, alcohol or lack of sleep bring most of my seizures on, and I'm working on getting them under control by giving up these things rather than taking my medication, I find the medication Valpro has some bad side effects.
I think my last seizure was a big one becauseI have been a scattered mess since then, I've slept for two days straight now and I have yet to leave the house. I can't think straight so if this doesn't make any sense I hope u understand why. My whole body is aching and my memory is slowly returning.
Anyways I'm almost 25 and I was diagnosed about 2 1/2 years ago.. does anybody else experience sleep related seizures?.. I truly believe if I can get enough sleep I will get my epiliepsy under control.
Thanks for any of your comments.
Comments
Re: Seizures During Sleep
Submitted by sameersaxena on Mon, 2009-04-20 - 12:13
Hi I have undergone Neurosurgery almost 7 years back for Right frontal Meningioma in simple words it was Brain Tumor of almost 4cm size.
I was never taking any alcoholic drinks, drugs etc. but when I have visited very high altitude for vacation due to lack of oxygen this got triggered and of course it happened during sleep. later on I was on medication for anti-siezure pills Eptoin then later on after surgery I had seizures atleast once or twice a year all were during sleep. Now I am closely monitoring Dialentine Level (Eptoin Drug level) which should not go below 10 micro gram per 10 ml to ensure no seizure. I am also taking Frisium 5 mg another drug to avoid seizure. So far things are in control and frequency is once in a year or less. The pain every one of you are going through is simillar to mine. The only way out is medication and proper diagnosis. Today I got my level tested it si lower will be getting it tezted from other lab then will take some action to ensure it does not go low. DOnt be panic it is good that it happen during sleep. One more thing I want to tell about me, I get a typical feeling and a typical dream before it happen which indicate that it is going to happen to me. You try to identify some similar indicator to help yourself better. God Bless You.
Hi I have undergone Neurosurgery almost 7 years back for Right frontal Meningioma in simple words it was Brain Tumor of almost 4cm size.
I was never taking any alcoholic drinks, drugs etc. but when I have visited very high altitude for vacation due to lack of oxygen this got triggered and of course it happened during sleep. later on I was on medication for anti-siezure pills Eptoin then later on after surgery I had seizures atleast once or twice a year all were during sleep. Now I am closely monitoring Dialentine Level (Eptoin Drug level) which should not go below 10 micro gram per 10 ml to ensure no seizure. I am also taking Frisium 5 mg another drug to avoid seizure. So far things are in control and frequency is once in a year or less. The pain every one of you are going through is simillar to mine. The only way out is medication and proper diagnosis. Today I got my level tested it si lower will be getting it tezted from other lab then will take some action to ensure it does not go low. DOnt be panic it is good that it happen during sleep. One more thing I want to tell about me, I get a typical feeling and a typical dream before it happen which indicate that it is going to happen to me. You try to identify some similar indicator to help yourself better. God Bless You.
Re: Seizures During Sleep
Submitted by lindsaystoican84 on Tue, 2009-09-29 - 12:17
hi,
My name is lindsay. I to have alot of the same problems you do . I smack my lips loud enough that it wakes my husband up and he sleeps in a totally different room. I have to noctornal seizures once a month. I too they say get owly and crabby and am extremely tired the day of that night i have proglems. Things will often taste funny or weird . All though i have never wet the bed during a bad night. I would love to know what brought all of this on. Please if u have any suggestions for me please respond. Im open to any and all suggestions.
thanks all!
hi,
My name is lindsay. I to have alot of the same problems you do . I smack my lips loud enough that it wakes my husband up and he sleeps in a totally different room. I have to noctornal seizures once a month. I too they say get owly and crabby and am extremely tired the day of that night i have proglems. Things will often taste funny or weird . All though i have never wet the bed during a bad night. I would love to know what brought all of this on. Please if u have any suggestions for me please respond. Im open to any and all suggestions.
thanks all!
Re: Seizures During Sleep
Submitted by Jrod on Tue, 2009-04-14 - 13:11
Hi there! My name is Jarrett I have been experiencing seizures pretty much all my life. I am 33, so I have a good idea of what you are going through. I just had a couple 2 days ago and I may have had a few in my sleep too. When I woke up I felt very light headed and everything in my body felt out of place. I even felt my brain move when I walk. That is why I lay around and sleep most of the day afterwards. It takes a couple of days for me to recover. The good thing is it only happens on the weekends every 3 or 4 times a year. I am like everybody else though. I have a full time job and I go to school to work on my future career as a Graphic Designer. I take 1700 mg daily of tegretol-xr and 1500 mg of depakote as well. I tried to get off Tegretol once before when I was a kid, because they thought I grew out of it. They were wrong. I had continues grand malls that they had to put me in coma to stop them. Which evidently gave me amnesia for a little while but everything soon came back. Until I graduated from high school and I must of had a really bad one, because I have had amnesia ever since. From high school on down is gone. But I learned to live with it. Other than my epilepsy, migraines, and asthma I am as normal as anyone else. I will walk around like you, but only when I am awake. I have learned to control myself. It just takes time. If you feel strange, light head, you have trouble responding to people, or your eyes get very heavy, then it is time to lay down and tell someone you are not feeling well and that you are epileptic. Don't let epilepsy get you down. At work and with my friends I am one of the coolest and toughest guys they know and they look to me for advice at times. I work out constantly and look to Jesus to help me through my life. Jesus has done a great deal for me. I still live with my mother to help support her and she has been there ever since for my seizures. My ex-fiance helps to support me when I need someone to talk too. She is an amazing woman. So don't be discouraged by your-epilepsy. God Bless You.