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Seizures During Sleep

Wed, 02/11/2009 - 22:16

 

Hi, I'm new to this site. I have most of my seizures in my sleep or in the morning after waking up.. my last one being two days ago. It seems that either illicit drugs, alcohol or lack of sleep bring most of my seizures on, and I'm working on getting them under control by giving up these things rather than taking my medication, I find the medication Valpro has some bad side effects.

I think my last seizure  was a big one becauseI have been a scattered mess since then, I've slept for two days straight now and I have yet to leave the house. I can't think straight so if this doesn't make any sense I hope u understand why. My whole body is aching and my memory is slowly returning.

Anyways I'm almost 25 and I was diagnosed about 2 1/2 years ago.. does anybody else experience sleep related seizures?.. I truly believe if I can get enough sleep I will  get my epiliepsy under control.

Thanks for any of your comments.

Comments

Re: Seizures During Sleep

Submitted by doglady on Tue, 2009-03-10 - 11:12
I started having "sleep seizures" as a child.  Mine are like a dream superimposed over reality.  They often happen as I am coming out of sleep and is like a vivid dream but yet I can here what is happening in the house around me like a dog barking or my family.  I can not move or speak.  My mom was mentally ill so as a child I never told anyone for fear of being labeled as crazy.  Unfortunately not getting treatment was bad in my case because they worsened and I began having other seizures and eventually Grand Mal in my late teens early twenties.  My seizues are in the temporal lobe.  They have never been able to get the "sleep" type seizures under complete control and I can have these at other times.  I get very sleepy with a very long prodrone (I do not have Narcolepsy).  It took for me to have one of these episodes during an EEG for the Neuro to get a handle on it.  There are so many meds to out there I am sure if you are patient they can find one that will work with you. God bless.

Re: Seizures During Sleep

Submitted by mew3000 on Wed, 2009-03-11 - 18:49
I actually signed on today wanting to ask about "sleep seizures". I am very new to this whole seizure thing. I dont even know if I have epilepsy. I haven't been diagnosed really with anything. My seizures started about a month and half ago and nobody seems to know why. I was hospitalized for a week and I know I was having grand mals in my sleep but only cuz people told me. The past few nights I have had EXTREMELY restless nights, despite taking my Ambien (I'm an insomniac also). Usually the Ambien works wonders. So I'm wondering if I'm having seizures. Of course I live by myself so I really have no idea. Is there any signs/symptoms you notice when coming out of a sleep seizure?

Re: Seizures During Sleep

Submitted by daddio on Tue, 2009-04-14 - 10:46

Hi I used to experience absence and grand mal siezures up until surgery 4 years ago,since surgery I now have nocturnal siezures.My wife tells me I make lip smacking noises then go walkies rumaging through cupboards and even making tea(unknown to me).Recently I have been coming round towards the end of my siezure and feel very disoriented finding it diffacult to get a grasp of what day it is or what is actualy going on,I also have a horrible taste in my mouth and a strange smell sensation.Normally a good days sleep brings me back to normality although Im always worried about going back to bed incase I have another siezure.I currently take 1600mg of tegrotol daily 1000mg naproxen daily and eat paracetomol like sweets due to the horrendous headaches I get normally leading up to a siezure.My family also say I get depressed and irritable prior to a bad night(unknown to me)I know Im always down after a siezure,thats because it still scares me to bits. Does anyone else have monthly walkies doing strange things as on my last one I pulled the kitchen draw fronts off.God knows what Im looking for,Im starting to think its my sanity.Take care all.

Hi I used to experience absence and grand mal siezures up until surgery 4 years ago,since surgery I now have nocturnal siezures.My wife tells me I make lip smacking noises then go walkies rumaging through cupboards and even making tea(unknown to me).Recently I have been coming round towards the end of my siezure and feel very disoriented finding it diffacult to get a grasp of what day it is or what is actualy going on,I also have a horrible taste in my mouth and a strange smell sensation.Normally a good days sleep brings me back to normality although Im always worried about going back to bed incase I have another siezure.I currently take 1600mg of tegrotol daily 1000mg naproxen daily and eat paracetomol like sweets due to the horrendous headaches I get normally leading up to a siezure.My family also say I get depressed and irritable prior to a bad night(unknown to me)I know Im always down after a siezure,thats because it still scares me to bits. Does anyone else have monthly walkies doing strange things as on my last one I pulled the kitchen draw fronts off.God knows what Im looking for,Im starting to think its my sanity.Take care all.

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