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toxic dilantin level
Mon, 11/03/2008 - 18:57Hi to everyone, I had a dilantin level surge up to 60.4, has anyone had a level that just surged this high before? I felt i was insane and no one could tell around me that i was out of this world, felt like i was living a bad dream. I can not think straight and it's been over a month since this happened. I take 400mg a night.
david
Comments
Re: toxic dilantin level
Submitted by wonderwoman on Fri, 2009-04-10 - 19:14
Re: toxic dilantin level
Submitted by srchtt3 on Sun, 2009-04-12 - 13:51
Oh my word! I can't believe they didn't help you come down off of it! It is a toxic level for a reason, it can KILL you.. My gosh! People can be so ignorant it is just beyond aggrivating!
Listen to your body. U know it better than anyone else. Trust yourself.
Crystal
Oh my word! I can't believe they didn't help you come down off of it! It is a toxic level for a reason, it can KILL you.. My gosh! People can be so ignorant it is just beyond aggrivating!
Listen to your body. U know it better than anyone else. Trust yourself.
Crystal
Re: toxic dilantin level
Submitted by srchtt3 on Fri, 2009-04-10 - 14:36
One of the first meds they put me on was Dilantin. I kept having more and more seizures. The doctors kept upping my dosage, even though I kept telling them I didn't feel right. They were insistant that I get to the 'therapeutic level'. Finally I collapsed at a friends house. By this time I couldn't sit still, I was constantly jerking and rocking, couldn't walk right, looked like I was a drunkard, had stopped driving obviously and I didn't make any sense when I spoke. If you talked to me you'd have repeat things over and over to help me understand and even then it was iffy. When I collapsed they hospital the emts took me to did blood work and I was over twice the 'therapeutic level'. I was admitted to the hospital for a week and half to get detoxed off the meds and was in NICU. I had lost over 35lbs which was a lot for me because I'm not overweight by any means. I was completely out of my mind. I don't even remember most of it.
I never went back on that med though and I fired that doctor. I had been calling and leaving messages for him the whole week before I collapsed, telling him that something was wrong. Letting them know my symptoms and begging for help. They did nothing. I've learned to become more pushy and tell them when I'm coming down from a dosage rather than asking. Then I take their advice on how to do it and which level of mg to try. But I listen to my body more than the doctors. After all, it will let me know when something isn't right.
The other thing I learned, some people can't take the 'therapeutic level'. It is simply too much meds for them. Such as me. I'm sensitive to medication, I need a small dosage and it works better. A higher dosage and I will have more seizures. And I, most importantly, can't function at all! That is not an option. I'm a mother. I've got to keep going. At least as much as my brain will let me. =D
One of the first meds they put me on was Dilantin. I kept having more and more seizures. The doctors kept upping my dosage, even though I kept telling them I didn't feel right. They were insistant that I get to the 'therapeutic level'. Finally I collapsed at a friends house. By this time I couldn't sit still, I was constantly jerking and rocking, couldn't walk right, looked like I was a drunkard, had stopped driving obviously and I didn't make any sense when I spoke. If you talked to me you'd have repeat things over and over to help me understand and even then it was iffy. When I collapsed they hospital the emts took me to did blood work and I was over twice the 'therapeutic level'. I was admitted to the hospital for a week and half to get detoxed off the meds and was in NICU. I had lost over 35lbs which was a lot for me because I'm not overweight by any means. I was completely out of my mind. I don't even remember most of it.
I never went back on that med though and I fired that doctor. I had been calling and leaving messages for him the whole week before I collapsed, telling him that something was wrong. Letting them know my symptoms and begging for help. They did nothing. I've learned to become more pushy and tell them when I'm coming down from a dosage rather than asking. Then I take their advice on how to do it and which level of mg to try. But I listen to my body more than the doctors. After all, it will let me know when something isn't right.
The other thing I learned, some people can't take the 'therapeutic level'. It is simply too much meds for them. Such as me. I'm sensitive to medication, I need a small dosage and it works better. A higher dosage and I will have more seizures. And I, most importantly, can't function at all! That is not an option. I'm a mother. I've got to keep going. At least as much as my brain will let me. =D