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Seizures During Sleep
Wed, 02/11/2009 - 22:16
Hi, I'm new to this site. I have most of my seizures in my sleep or in the morning after waking up.. my last one being two days ago. It seems that either illicit drugs, alcohol or lack of sleep bring most of my seizures on, and I'm working on getting them under control by giving up these things rather than taking my medication, I find the medication Valpro has some bad side effects.
I think my last seizure was a big one becauseI have been a scattered mess since then, I've slept for two days straight now and I have yet to leave the house. I can't think straight so if this doesn't make any sense I hope u understand why. My whole body is aching and my memory is slowly returning.
Anyways I'm almost 25 and I was diagnosed about 2 1/2 years ago.. does anybody else experience sleep related seizures?.. I truly believe if I can get enough sleep I will get my epiliepsy under control.
Thanks for any of your comments.
Comments
Re: Seizures During Sleep
Submitted by sonettidamore on Fri, 2009-03-13 - 22:11
Re: Seizures During Sleep
Submitted by rcmaster on Wed, 2009-04-08 - 17:53
Hi,
I'm 29 and had my first Grand Mal seizure in 2002 when I was 22. I have had two seizures while asleep, awoke with memory loss but realizing that I must of have had a seizure. Within 5 minutes I was completely conscious. I don't smoke or drink and I exercise and eat healthy regularly. I am reluctant to take any medications whether it be for headaches, colds or seizures. I took Valproic Acid for about 1 1/2 years and it made the seizures worse as I would have small seizures along with the big ones. Against doctors orders of taking double the dosage, I stopped taking mediction. I then had two Grand Mal seizures every year as opposed to 1 a month along with smaller abscent seizures. Since November of 2007, when I had my last seizure I began taking NOVO-CLOBAZAM mainly to get my license back. Well, I have been seizure free since then. I hate intoxicating my body with chemicals, but I can't find a way to stop them without the medication. I had a friend who last year was diagnosed with epilepsy........2 weeks ago he died from a seizure while asleep. Loss of breath and suffication. It's difficult to answer your question because seizures occur for so many reasons. Some, like mine "unknown cause". It may help to get regular sleep but the cause is unknown. Until or if you are able to find the cause you should get some medical advice, whether it be chemicals or a natural way like naturopathy or homeopathy. I know of someone who was anemic and would have seizures every time his blood level would drop. A medical doctor couldn't help him or didn't care to, but a naturopath through herbs was able to help him. He is seizure free.
R.I.P (Awet),
your friend.
Hi,
I'm 29 and had my first Grand Mal seizure in 2002 when I was 22. I have had two seizures while asleep, awoke with memory loss but realizing that I must of have had a seizure. Within 5 minutes I was completely conscious. I don't smoke or drink and I exercise and eat healthy regularly. I am reluctant to take any medications whether it be for headaches, colds or seizures. I took Valproic Acid for about 1 1/2 years and it made the seizures worse as I would have small seizures along with the big ones. Against doctors orders of taking double the dosage, I stopped taking mediction. I then had two Grand Mal seizures every year as opposed to 1 a month along with smaller abscent seizures. Since November of 2007, when I had my last seizure I began taking NOVO-CLOBAZAM mainly to get my license back. Well, I have been seizure free since then. I hate intoxicating my body with chemicals, but I can't find a way to stop them without the medication. I had a friend who last year was diagnosed with epilepsy........2 weeks ago he died from a seizure while asleep. Loss of breath and suffication. It's difficult to answer your question because seizures occur for so many reasons. Some, like mine "unknown cause". It may help to get regular sleep but the cause is unknown. Until or if you are able to find the cause you should get some medical advice, whether it be chemicals or a natural way like naturopathy or homeopathy. I know of someone who was anemic and would have seizures every time his blood level would drop. A medical doctor couldn't help him or didn't care to, but a naturopath through herbs was able to help him. He is seizure free.
R.I.P (Awet),
your friend.
Re: Seizures During Sleep
Submitted by rowfan55 on Thu, 2009-03-12 - 01:26
Morning, I have partial complex during waking hours and generalized tonic-clonic seizures only during my sleep. I sleep alone, so how do I know? I wake up out of a hard sleep, half the time the bed is wet. The pillow is wet from drool and sometimes that is bloody because I have bitten the sides of my tongue or the insides of my cheeks. I can't move right and I feel like I've been run over by a steam roller. For a day or two after the seizure, I am "stupid"—don't remember things well at all, sometimes forget things right after people tell me, slurred speech, and I don't get jokes or figures of speech. I am not taking medication for them because I only have four or so a year and they must not be very severe because compared to other people I seem to recover comparatively quickly. Also, they had me on such a high dose of Dilantin to control them that I felt like I'd had a couple of beers all the time. It wasn't worth it to me. I learned what my triggers are—not enough sleep or protein in my diet, too much sugar or starch, and too much caffeine—and I work to avoid them. Obviously I have not consulted my neuro; I don't want to have to go back on the meds. But I would never recommend you do that. If you're going to try to control the seizures by avoiding triggers, please do so in cooperation with your neuro. Also, there are some new pillows out there for people who have seizures while sleeping. You might want to check them out.
God bless,
Rowfan
Morning, I have partial complex during waking hours and generalized tonic-clonic seizures only during my sleep. I sleep alone, so how do I know? I wake up out of a hard sleep, half the time the bed is wet. The pillow is wet from drool and sometimes that is bloody because I have bitten the sides of my tongue or the insides of my cheeks. I can't move right and I feel like I've been run over by a steam roller. For a day or two after the seizure, I am "stupid"—don't remember things well at all, sometimes forget things right after people tell me, slurred speech, and I don't get jokes or figures of speech. I am not taking medication for them because I only have four or so a year and they must not be very severe because compared to other people I seem to recover comparatively quickly. Also, they had me on such a high dose of Dilantin to control them that I felt like I'd had a couple of beers all the time. It wasn't worth it to me. I learned what my triggers are—not enough sleep or protein in my diet, too much sugar or starch, and too much caffeine—and I work to avoid them. Obviously I have not consulted my neuro; I don't want to have to go back on the meds. But I would never recommend you do that. If you're going to try to control the seizures by avoiding triggers, please do so in cooperation with your neuro. Also, there are some new pillows out there for people who have seizures while sleeping. You might want to check them out.
God bless,
Rowfan