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How can I find a neuroendocrinologist?
Mon, 12/22/2008 - 10:03Hello Everyone.....
My daughter was diagnosed with juvenile myoclonic epilepsy a year ago. She had her first tonic clonic about 4 weeks ago, and had another one early this morning. I am tracking them and find the TCs have ocurred either during ovulation or at the beginning of her period. She is currently on Keppra, Depakote ER, Klonopin and Ativan prn and is still having breakthrough seizures. I am POSITIVE there is a hormonal connection and would like to find a neuroendocrinologist to evaluate her. Does anyone know how to find one or know of one anywhere within a days drive of Pittsburgh, PA?
God Bless.....
Michele
Comments
Re: How can I find a neuroendocrinologist?
Submitted by dainty on Wed, 2009-04-01 - 22:02
I am so sorry to hear of your dx. Life is so unfair. I have added you to our prayers and pray they find the cure or some help. Both my kids have JME and I fear it being progressive as well. Hang in there. We are here for you.
joan*
http://health.groups.yahoo.com/group/JuvenileMyoclonicEpilepsy/
Son lamictal 175 2x 19 Grand Mals - Stable Daughter keppra 750 16 Juvenile myclonic - Not stable yet
Both had first issues at 15 - Both JME - gotta love puberty : ) * Both dealing with the nuances that come with it.
I am so sorry to hear of your dx. Life is so unfair. I have added you to our prayers and pray they find the cure or some help. Both my kids have JME and I fear it being progressive as well. Hang in there. We are here for you.
joan*
http://health.groups.yahoo.com/group/JuvenileMyoclonicEpilepsy/
Son lamictal 175 2x 19 Grand Mals - Stable Daughter keppra 750 16 Juvenile myclonic - Not stable yet
Both had first issues at 15 - Both JME - gotta love puberty : ) * Both dealing with the nuances that come with it.
Re: How can I find a neuroendocrinologist?
Submitted by confused924 on Thu, 2009-03-26 - 21:06
Michele -
Just wondering how things are going with Jess and if you have any updates.
Michele -
Just wondering how things are going with Jess and if you have any updates.
Re: How can I find a neuroendocrinologist?
Submitted by confused924 on Thu, 2009-03-12 - 22:23
I AM SO SORRY TO HEAR THIS! I have never heard of that -- I will definitely visit that web-site. How much longer will you be at Children's? Is there surgery that can help with this? All I can say is I will keep you in my prayers. PLEASE keep me posted.