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toxic dilantin level

Mon, 11/03/2008 - 18:57

Hi to everyone,  I had a dilantin level surge up to 60.4, has anyone had a level that just surged this high before? I felt i was insane and no one could tell around me that i was out of this world, felt like i was living a bad dream.  I can not think straight and it's been over a month since this happened.  I take 400mg a night. 

david

Comments

Re: toxic dilantin level

Submitted by wonderwoman on Sat, 2009-03-28 - 22:19
No, Australian. But therapeutic level is also 40-80 here. So if you were at 100 and experiencing toxicity, then 113 would fit in a toxic range? I was wondering why they were talking about 24 being a high range, and if there was a difference country to country. Experience of the past week has been very traumatic and I have been treated like I have mental problems, but I didn't know there were even these side effects possible, and the facial contortions were terrifying. They have settled right down now as the dose has been reduced, but I am still feeling very confused as to how my blood levels even got so high. I am a small person (5 ft 3, 68 kg don't know the pounds of that) so maybe 500 mg per day for so long was too much for my body size? Was not tested for a year. Just want to get off this med. At this point just want to go off all meds and take my chances, I'm tired of all side effects after four years and six different AEDs. Until two days ago I didn't even know they were called AEDs! That's how little research into all of this I have done - just wanted to take the pills and get on with life. But the pills are not letting that happen, and right now I'd rather live with the epilepsy, if that makes any kind of sense. Thanks WW

Re: toxic dilantin level

Submitted by jubatum on Sun, 2009-03-29 - 22:53

yup 113 is toxic here too.

not fun!

I'm also small.. less than 5 4 and i'm 120lbs.. divide by 2,2 to get kgs.

AEDs are a bitch.. its just a fine line between side effects and effectiveness.

i'm going back to the dr to get my test results for my last level.. my whole body is tingly and pain-like.  they didn't call me so i assume the levels are ok but for me i need actual numbers. to me there is a huge difference between 41 and 79... both in the therapuetic range but still.....and i want to know why my body is all numb and tingly.

ever experienced that?

i find with AEDs and your health you gotta be pushy.. tell them you feel off and they will test your levels..

let me know bout the tingly stuff

yup 113 is toxic here too.

not fun!

I'm also small.. less than 5 4 and i'm 120lbs.. divide by 2,2 to get kgs.

AEDs are a bitch.. its just a fine line between side effects and effectiveness.

i'm going back to the dr to get my test results for my last level.. my whole body is tingly and pain-like.  they didn't call me so i assume the levels are ok but for me i need actual numbers. to me there is a huge difference between 41 and 79... both in the therapuetic range but still.....and i want to know why my body is all numb and tingly.

ever experienced that?

i find with AEDs and your health you gotta be pushy.. tell them you feel off and they will test your levels..

let me know bout the tingly stuff

Re: toxic dilantin level

Submitted by wonderwoman on Tue, 2009-03-31 - 02:17
Not tingly, just went from exhausted, clumsy, bumping into stuff to BANG! on the floor, face grimacing, body jerking, for three days, even in my sleep. Then as the meds were lowered, face started to calm down, thank god, and eventually it has all stopped, but took a while to stop walking wonky. Also, had some itchy skin lesions (small) that cleared up overnight. Now I am just tired. Worst week of my life. I agree with you that there is a big difference between 41 and 79 - and from what I have read of Dilantin, that is a fact that is borne out in the research. It is possible to have a toxic reaction in the upper therapeutic range. I also think that each body is different, and everyone can have different reactions depending on what the meds do to your nervous system. So I got dizzy real fast on Lamatcil, for example. I have been having my friend (neuroscientist) do some research for me, and now I just want OFF this drug. She says if I am gonna be on it, my dr needs to make sure I am tested regularly, because toxicity can happen real quick, depending on my liver function. Scary stuff.

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