Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
kepra
Mon, 01/23/2006 - 08:45Comments
Re: kepra
Submitted by babytiny on Tue, 2008-11-04 - 01:47
Re: keppra (They're Back!!)
Submitted by 6wolf9 on Mon, 2013-01-14 - 13:47
I Started KEPPRA the day before HALLOWEEN of 2012 and Have'nt Had a Sezuire Since , where I use to have up to 40 gran-mal attacks a day. I have had 2 Brain Surgeries (One in 1987 and another in 1993) to slow my "Epilepsy" , niether have worked. I was on most meds while they where still in the makeing or before they were released to the PUBLIC in Canada. Some People LIKE to be Stoned, but I was So STONED from my meds that I HATED IT..., as I use to slide down walls and could'nt see Right because of all the meds I was on.(up to 12 diff meds 3x a day. I had a Sezuire Once and drove over a Car and Truck with a Dozer. I was retired by the end of the week at only 40yrs Old. I was on 300mg x 3 of Dilantin,300mg x 3 of Lamotrine, 300mg x 3 of Gabapentin & 1,0000mg of CLOAZAM (Frisium) a-day and was STILL Haveing Up to 40 gran-Mal Sezuires a-day and over 500 Auras a-day.
Since I started this LEVETIRACETAM (KEPPRA) the doctors cut my Dilantin back to 200mgs x 3, my Clobazam (Frisium) to 20mgs x 3 and the KEPPRA to 500mgs x 3 .(x3 = Morning , Noon and Night) Since they started me on KEPPRA , I have'nt had a SEZUIRE Since the day before HALLOWEEN of 2012., However., like you..., I am Very Irritable and have'nt Slept since Jan.05/2013 because I CAN'T sleep anymore!! (I am SO Irritable Now that I HELD a Cop UP against a Wall in a BANK and TOOK his GUN.., But I was ONLY in the BANK looking after my Mothers ACCOUNTS as She was Placed in the Hospital and is not Epected to leave.) On Jan.09/2013 the AURAS returned with a Vengeance...., Now when I have a AURA., my Right Leg (From the Hip to the Toe) and Right Arm(From the SHOULDER to the FINGER TIPS) Begin to TINGLE (till it Hurts) then they go completely NUMB and I can FEEL a SHARP PAIN Leave My SHOULDER rush into my HEAD. This ALL lasts for about 2 Minutes., and up till 5 minutes. I have'nt Experienced the Hair Loss..., YET !!
Wolf
I Started KEPPRA the day before HALLOWEEN of 2012 and Have'nt Had a Sezuire Since , where I use to have up to 40 gran-mal attacks a day. I have had 2 Brain Surgeries (One in 1987 and another in 1993) to slow my "Epilepsy" , niether have worked. I was on most meds while they where still in the makeing or before they were released to the PUBLIC in Canada. Some People LIKE to be Stoned, but I was So STONED from my meds that I HATED IT..., as I use to slide down walls and could'nt see Right because of all the meds I was on.(up to 12 diff meds 3x a day. I had a Sezuire Once and drove over a Car and Truck with a Dozer. I was retired by the end of the week at only 40yrs Old. I was on 300mg x 3 of Dilantin,300mg x 3 of Lamotrine, 300mg x 3 of Gabapentin & 1,0000mg of CLOAZAM (Frisium) a-day and was STILL Haveing Up to 40 gran-Mal Sezuires a-day and over 500 Auras a-day.
Since I started this LEVETIRACETAM (KEPPRA) the doctors cut my Dilantin back to 200mgs x 3, my Clobazam (Frisium) to 20mgs x 3 and the KEPPRA to 500mgs x 3 .(x3 = Morning , Noon and Night) Since they started me on KEPPRA , I have'nt had a SEZUIRE Since the day before HALLOWEEN of 2012., However., like you..., I am Very Irritable and have'nt Slept since Jan.05/2013 because I CAN'T sleep anymore!! (I am SO Irritable Now that I HELD a Cop UP against a Wall in a BANK and TOOK his GUN.., But I was ONLY in the BANK looking after my Mothers ACCOUNTS as She was Placed in the Hospital and is not Epected to leave.) On Jan.09/2013 the AURAS returned with a Vengeance...., Now when I have a AURA., my Right Leg (From the Hip to the Toe) and Right Arm(From the SHOULDER to the FINGER TIPS) Begin to TINGLE (till it Hurts) then they go completely NUMB and I can FEEL a SHARP PAIN Leave My SHOULDER rush into my HEAD. This ALL lasts for about 2 Minutes., and up till 5 minutes. I have'nt Experienced the Hair Loss..., YET !!
Wolf
Re: kepra
Submitted by allaboutme on Sat, 2009-03-21 - 16:02
I started Keppra as soon as it came on the market (I do not know what year). I now take 1000 MGs (three times a day) and have had VNS. I have not had mood swings, but APPETITE SUPPRESSION. I have one small lunch each day for four days in-a-row, the other three days I do not eat, I'm just not hungry. I do drink lots of water each day to prevent kidney stones from re-occuring. I have been too lazy to clean house and/or cook, infact I rarely do anything. The only hair loss I have had is when I comb my hair - not when I shampoo it. It seems the hair loss is because of Keppra for they started about the same time.
FYI, the other meds. I take are Lamictal (200 MG three times a day) and Diamox (125 MG three times a day). I asked my doctor to make each of them three times per day so I can take the same amount each time.
I started Keppra as soon as it came on the market (I do not know what year). I now take 1000 MGs (three times a day) and have had VNS. I have not had mood swings, but APPETITE SUPPRESSION. I have one small lunch each day for four days in-a-row, the other three days I do not eat, I'm just not hungry. I do drink lots of water each day to prevent kidney stones from re-occuring. I have been too lazy to clean house and/or cook, infact I rarely do anything. The only hair loss I have had is when I comb my hair - not when I shampoo it. It seems the hair loss is because of Keppra for they started about the same time.
FYI, the other meds. I take are Lamictal (200 MG three times a day) and Diamox (125 MG three times a day). I asked my doctor to make each of them three times per day so I can take the same amount each time.