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Feelings after having a seizure

Tue, 03/17/2009 - 00:19

We have a son who is 20 and non-verbal, he was seizure free for several years and then the medication stopped working, we have been working our way through medications trying to find the one that works best for him. 

During this process we are having seizures more often. As he is mentally at about a 2 years age level, we are concerned about what he is feeling after he has a seizure.  Having some insight to this would be very helpful to us as to how to care for him for the next several hours while he is recovering.  We have found that he sleeps pretty sound for about 5 or 6 hours after a big seizure, does not want much to eat or drink and the following day he is wired for the most part, very anxious and full of energy. 

 We know everyone is different but if we can just get some ideas as to what he might be feeling we can try and put two and two together at our end...

 Thanks so much for your information, sincerely...Kim and Keith

Comments

Re: Feelings after having a seizure

Submitted by fortney4 on Wed, 2009-03-18 - 01:15
Michael, Thank you so much for sharing, so you are really thirsty and it is hard to get the mind back on the fast track, that is really great information as he drinks a lot anyway but I will make sure to offer fluids more often after these seizures.  I wondered how his mind was working as he seems disoriented after his sleeping period.  He also sleeps really sound for about the same time period as you do.  I really appreciate you taking the time to share your story with me as I have a feeling we may be in for a few more of these before we get the meds back on track again.  It is so hard to not be able to communicate with him and know what he is feeling or explain to him what just happened, I just want to make sure we are doing the best we can and educate ourselves to what additional needs he may have.  Please take care, and again thank you very much for your time and information, Warmly, Kim

Re: Feelings after having a seizure

Submitted by jderry on Tue, 2009-03-17 - 12:53
  How I feel after my sez is simple. Imagine that you were hooked up to a catapault on a aircraft carrier and shot off the bow. But not having any wings you just hit the water any get run over by the ship and through the propellers.

Re: Feelings after having a seizure

Submitted by fortney4 on Wed, 2009-03-18 - 01:08
Yikes, that rough huh, It makes me feel really sad that I can't share this verbally with my son, as I am sure he is not sure what happened to him to feel so poorly.  I will treat him with lots of TLC after his seizures keeping this in mind.  Not that we don't always but this is so different for him and I want to make sure we are doing what we can to make him comfortable.  Thanks so much for sharing.  Please take care, warmly...Kim

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