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Feelings after having a seizure
Tue, 03/17/2009 - 00:19We have a son who is 20 and non-verbal, he was seizure free for several years and then the medication stopped working, we have been working our way through medications trying to find the one that works best for him.
During this process we are having seizures more often. As he is mentally at about a 2 years age level, we are concerned about what he is feeling after he has a seizure. Having some insight to this would be very helpful to us as to how to care for him for the next several hours while he is recovering. We have found that he sleeps pretty sound for about 5 or 6 hours after a big seizure, does not want much to eat or drink and the following day he is wired for the most part, very anxious and full of energy.
We know everyone is different but if we can just get some ideas as to what he might be feeling we can try and put two and two together at our end...
Thanks so much for your information, sincerely...Kim and Keith
Comments
Re: Feelings after having a seizure
Submitted by fortney4 on Tue, 2009-03-17 - 08:04
Good Morning Kim, thanks for replying,
I have a couple more questions if you don't mind answering, again knowing everyone is different but maybe we can do a better job of helping him if we can figure it out. I have searched several web sites but not one talks about the after effects so I thought this would be a great way to gather informtaion...
Do you have a headache? Do you remember what has happened or is is it a blank spot? Do you feel bad or sore the following day? Are you hungry or sick to your stomache? Thirsty? How long do the spaghetti legs last? After this last one we sat with him for several hours as we were afraid that he would try and get up, fall and hurt himself. The overheating is a great thought as he loves to sleep under several blankets, winter and summer so we will try and remove one or two to try and cool him down should this happen again, as I am sure it will. He also has Autism on top of it all so the sensory stimulation plays a big part as well.
Again thank you for your time and answering my questions, have a wonderful day and may you be as seizure free as possible for a long time to come...happy thoughts your way...a greatful mom...Kim
Good Morning Kim, thanks for replying,
I have a couple more questions if you don't mind answering, again knowing everyone is different but maybe we can do a better job of helping him if we can figure it out. I have searched several web sites but not one talks about the after effects so I thought this would be a great way to gather informtaion...
Do you have a headache? Do you remember what has happened or is is it a blank spot? Do you feel bad or sore the following day? Are you hungry or sick to your stomache? Thirsty? How long do the spaghetti legs last? After this last one we sat with him for several hours as we were afraid that he would try and get up, fall and hurt himself. The overheating is a great thought as he loves to sleep under several blankets, winter and summer so we will try and remove one or two to try and cool him down should this happen again, as I am sure it will. He also has Autism on top of it all so the sensory stimulation plays a big part as well.
Again thank you for your time and answering my questions, have a wonderful day and may you be as seizure free as possible for a long time to come...happy thoughts your way...a greatful mom...Kim
Re: Feelings after having a seizure
Submitted by MichaelK on Tue, 2009-03-17 - 11:28
This is extremely hard for you to cope with and I hope that your son gets better as well. I have had grand mal seizures for many years as well. As for me, after a grand mal I feel extremely disoriented and cannot talk at all. If I try to talk, it comes out as gibberish. My wife tells me that I will then sleep for anywhere from 5 to 24 hrs. I know that there is a period that I can talk, but it is later after a grand mal occurs. When I am able to speak, I am not able to reason and can only speak in simple sentences. My strength is severely weakened and I do get thirsty. I do not have any headaches.
This is extremely hard for you to cope with and I hope that your son gets better as well. I have had grand mal seizures for many years as well. As for me, after a grand mal I feel extremely disoriented and cannot talk at all. If I try to talk, it comes out as gibberish. My wife tells me that I will then sleep for anywhere from 5 to 24 hrs. I know that there is a period that I can talk, but it is later after a grand mal occurs. When I am able to speak, I am not able to reason and can only speak in simple sentences. My strength is severely weakened and I do get thirsty. I do not have any headaches.
Re: Feelings after having a seizure
Submitted by kmbral1 on Tue, 2009-03-17 - 01:03
I am sorry about your son and i hope he gets better, i have grand mal seizures aswell and i have had them for many years and they happen quite often but usually after a grand mal seizure. i am all disoriented. i cant speak, gibberish comes out of my mouth and i cant get up. I can sometimes think of what i want to say but it just doesnt come out which is frustrating. if i try to even sit i cant i need my sister to help me and she usually watches me for a couple of hours to make sure i dont have another one, but i can never get up my legs are like spaghetti and i need help to get up so i dont even bother sometimes after a seizure i just sleep it off. for hours and hours. thats the best remedy. plus my family usually puts a cold compress on my forhead after one because they say i get super hot and they have noticed it helps me come out of it sooner. hope this helps.
Kim
I am sorry about your son and i hope he gets better, i have grand mal seizures aswell and i have had them for many years and they happen quite often but usually after a grand mal seizure. i am all disoriented. i cant speak, gibberish comes out of my mouth and i cant get up. I can sometimes think of what i want to say but it just doesnt come out which is frustrating. if i try to even sit i cant i need my sister to help me and she usually watches me for a couple of hours to make sure i dont have another one, but i can never get up my legs are like spaghetti and i need help to get up so i dont even bother sometimes after a seizure i just sleep it off. for hours and hours. thats the best remedy. plus my family usually puts a cold compress on my forhead after one because they say i get super hot and they have noticed it helps me come out of it sooner. hope this helps.
Kim