VEEG?

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I am scheduled for a VEEG on Thursday morning to ??? My seizures have been well controlled and I am very afraid I am going to go in there and sit for 6 days and nothing will happen. I am going to call my doc tomorrow but he probably won't call me back. I guess I am just nervous, but I really cannot afford to miss all the work. I told my job I would be gone possibly from this Thurs to next Tues, six days total.

What is the clinical benefit to the VEEG? I know it can help map things out if you are considering brain surgery, but right now I'm not. I guess its a good thing to have done but I am like 70% sure I am not going to have a seizure. I am going to try to talk to a doc on Thurs. when I first go in, because I am just not seeing the point of going thru this HUGE disruption in my life.

Comments

Re: VEEG?

Submitted by yogaguy on Sun, 2009-03-15 - 04:23

Hi Amyolive. I'm glad all went well with you v-eeg. I'm also scheduled to go for one this next monday. I was wondering about a couple things though...1. How do they let people "shower, or clean themselves," when they have a v-eeg? And did they take away your medications that your on, "right away" on the first day? Or do they "gradually" ween you off them? Thanks. Sincerely, Randy

Re: VEEG?

Submitted by LindaMitchell on Fri, 2009-03-13 - 22:33

I have been following this thread but I am new as of a couple of months to this site. I live overseas in the Middle East and although I have had epilepsy since I was 12 (I am now 55), I was first diagnosed with G/M and then after 24 years I found a neuro who told me it was Juvenile Myoclonic Epilepsy. I was switched to valproate and for 14 years was basically controlled - I have had only 2 G/Ms since then and a couple of jerks every couple of months, so basically well-controlled.

Over the past 6 months my JME has gotten incredibly worse - and my new neuro (I switched countries a few years back) - upped by Valproate, and then added Keppra and then Clonazepam all since Oct 08. And it is still not under control. I had so many jerks some nights - upwards of 40 - that when I texted my neuro less than a week ago (she happens to be out of town at the moment on an emergency) she told me to see her colleague. I did and he upped my Clonazepam and said I needed a new EEG plus a VEEG.

I'll be having the regular EEG here on Monday, but then I'll have to come back to the US for a VEEG, since there are no VEEGs in this country. I have never had a VEEG and am rather scared about it all. (I don't have a neuro in the US since I have lived overseas so long.) Since I'm not controlled it is making me work at much less capacity then I am capable of - plus all these meds don't help. (I'm a middle school math teacher.)

I guess I'm writing for a little hand-holding because it's one thing to take a week out of work, and another to have to pack up and leave your familiar home and go back to a part of the States I don't know well at all, and then hear how many people go through the process and "they don't perform". Personally I don't see how I won't perform as I am having jerks on a daily basis, but just to say, that I am glad there is a community out there who has gone through this before and I can write to.

Also, what's the normal length of time it takes to get admitted into one of these places. I am so exhausted, that if I'm going to go through it, I want it done soon.

Any advise would be warmly appreciated? And btw, do they allow you to bring your computer into the EMUs? I can't imagine not being in skype contact with my friends back here.

Thanks,

Linda

I have been following this thread but I am new as of a couple of months to this site.  I live overseas in the Middle East and although I have had epilepsy since I was 12 (I am now 55), I was first diagnosed with G/M and then after 24 years I found a neuro who told me it was Juvenile Myoclonic Epilepsy.  I was switched to valproate and for 14 years was basically controlled - I have had only 2 G/Ms since then and a couple of jerks every couple of months, so basically well-controlled. Over the past 6 months my JME has gotten incredibly worse - and my new neuro (I switched countries a few years back) - upped by Valproate, and then added Keppra and then Clonazepam all since Oct 08.  And it is still not under control.  I had so many jerks some nights - upwards of 40 - that when I texted my neuro less than a week ago (she happens to be out of town at the moment on an emergency) she told me to see her colleague.  I did and he upped my Clonazepam and said I needed a new EEG plus a VEEG.   I'll be having the regular EEG here on Monday, but then I'll have to come back to the US for a VEEG, since there are no VEEGs in this country. I have never had a VEEG and am rather scared about it all. (I don't have a neuro in the US since I have lived overseas so long.)  Since I'm not controlled it is making me work at much less capacity then I am capable of - plus all these meds don't help.  (I'm a middle school math teacher.) I guess I'm writing for a little hand-holding because it's one thing to take a week out of work, and another to have to pack up and leave your familiar home and go back to a part of the States I don't know well at all, and then hear how many people go through the process and "they don't perform".  Personally I don't see how I won't perform as I am having jerks on a daily basis, but just to say, that I am glad there is a community out there who has gone through this before and I can write to. Also, what's the normal length of time it takes to get admitted into one of these places.  I am so exhausted, that if I'm going to go through it, I want it done soon. Any advise would be warmly appreciated?  And btw, do they allow you to bring your computer into the EMUs?  I can't imagine not being in skype contact with my friends back here. Thanks, Linda

I have been following this thread but I am new as of a couple of months to this site. I live overseas in the Middle East and although I have had epilepsy since I was 12 (I am now 55), I was first diagnosed with G/M and then after 24 years I found a neuro who told me it was Juvenile Myoclonic Epilepsy. I was switched to valproate and for 14 years was basically controlled - I have had only 2 G/Ms since then and a couple of jerks every couple of months, so basically well-controlled.

Over the past 6 months my JME has gotten incredibly worse - and my new neuro (I switched countries a few years back) - upped by Valproate, and then added Keppra and then Clonazepam all since Oct 08. And it is still not under control. I had so many jerks some nights - upwards of 40 - that when I texted my neuro less than a week ago (she happens to be out of town at the moment on an emergency) she told me to see her colleague. I did and he upped my Clonazepam and said I needed a new EEG plus a VEEG.

I'll be having the regular EEG here on Monday, but then I'll have to come back to the US for a VEEG, since there are no VEEGs in this country. I have never had a VEEG and am rather scared about it all. (I don't have a neuro in the US since I have lived overseas so long.) Since I'm not controlled it is making me work at much less capacity then I am capable of - plus all these meds don't help. (I'm a middle school math teacher.)

I guess I'm writing for a little hand-holding because it's one thing to take a week out of work, and another to have to pack up and leave your familiar home and go back to a part of the States I don't know well at all, and then hear how many people go through the process and "they don't perform". Personally I don't see how I won't perform as I am having jerks on a daily basis, but just to say, that I am glad there is a community out there who has gone through this before and I can write to.

Also, what's the normal length of time it takes to get admitted into one of these places. I am so exhausted, that if I'm going to go through it, I want it done soon.

Any advise would be warmly appreciated? And btw, do they allow you to bring your computer into the EMUs? I can't imagine not being in skype contact with my friends back here.

Thanks,

Linda

VEEG?

Comments

Re: VEEG?

Submitted by yogaguy on Sun, 2009-03-15 - 04:23

Re: VEEG?

Submitted by LindaMitchell on Fri, 2009-03-13 - 22:33

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