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Grow out of seizures???

Sun, 05/21/2006 - 21:52
Hey, have you other parents out there heard that your child could grow out of their seizure disorder? My Zakry has idiopathic epi, so does that mean that he should be able to grow out of it? We are running one more metabolic test, but that's just to be safe (we thought he had MSUD). Has anyone else heard this? Has anyone else had an experience where someone "grew out of it?" Just looking for the positive!

Comments

Re: Grow out of seizures???

Submitted by ekoorb on Thu, 2006-05-25 - 18:36
Yes, in fact my child was diagnosed with a type of epilepsy that the kids outgrow (fingers crossed). It is called Benign Occipital Childhood Epilepsy or Panayiotopoulos Syndrome. There is also Benign Rolandic Childhood Epilepsy, also another form stats show the kids outgrow. Has your child's epilepsy been diagnosed as a particular kind?

Re: Grow out of seizures???

Submitted by KMolder on Fri, 2009-03-06 - 14:41

Ekoorb,

I have read your posts and I know you are very knowledgeable on this type but this is just a post that other parents may read and know some things are not always what they seem and there is another misdiagnosis but ultimatly resolved case. 

Parents know all the different conditions or types of Childhood Seziures.

Knowledge is key!

My Daughter was also diagnosed with Childhood Epilepsy, until I did over 100+ hours of research.  I compared her symptoms and eeg results etc... to everything I could find.  What I found was that she 100% matched Panayiotopolos Syndrome.  It took dealling with a very upset doctor, providing him with facts regarding medications possibly increasing the seizures to get him to retract the use of medications.  I am not saying medications are un-neccessary but in our case she had only one seizure lasting >20 minutes.  We are now almost three years with no seizures.

Our Daugter's Case

3 years old, one hour into night time sleep, vomited, became unresponsive, eyes and head tilted to left, lasting >20 minutes, EEG was abnormal (occipital spikes) during sleep and there were brief generalized discharges (like that of absent seizures).  She had no cognitive or motor skill damage.  She is a bright 5 year old almost 6 and has shown no signs of any type of seizures since that night.

Good luck all and God Bless

Ekoorb,

I have read your posts and I know you are very knowledgeable on this type but this is just a post that other parents may read and know some things are not always what they seem and there is another misdiagnosis but ultimatly resolved case. 

Parents know all the different conditions or types of Childhood Seziures.

Knowledge is key!

My Daughter was also diagnosed with Childhood Epilepsy, until I did over 100+ hours of research.  I compared her symptoms and eeg results etc... to everything I could find.  What I found was that she 100% matched Panayiotopolos Syndrome.  It took dealling with a very upset doctor, providing him with facts regarding medications possibly increasing the seizures to get him to retract the use of medications.  I am not saying medications are un-neccessary but in our case she had only one seizure lasting >20 minutes.  We are now almost three years with no seizures.

Our Daugter's Case

3 years old, one hour into night time sleep, vomited, became unresponsive, eyes and head tilted to left, lasting >20 minutes, EEG was abnormal (occipital spikes) during sleep and there were brief generalized discharges (like that of absent seizures).  She had no cognitive or motor skill damage.  She is a bright 5 year old almost 6 and has shown no signs of any type of seizures since that night.

Good luck all and God Bless

Re: Grow out of seizures???

Submitted by ekoorb on Tue, 2009-03-24 - 23:40
KMolder-  I was not clear from your post if you were saying I gave some incorrect information.  I hope not.  I am just trying to help because I was very fortunate to find an incredible doctor who was able to diagnose our daughter.  Because BOCE is not as common, when I first started on this site, there was little to no discussions on it.  I wanted to make sure that anyone who was as terrified as I was over 4 years ago had access to our knowledge and could find a fact pattern similar to ours in case their doc was not giving a specific diagnosis versus a general seizure disorder.  Having a name to it helps the family on so many levels and the knowledge is key for meds and other decisions.  If there is anything I need to clarify or correct, please let me know.

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