The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Seizures During Sleep

Wed, 02/11/2009 - 22:16

 

Hi, I'm new to this site. I have most of my seizures in my sleep or in the morning after waking up.. my last one being two days ago. It seems that either illicit drugs, alcohol or lack of sleep bring most of my seizures on, and I'm working on getting them under control by giving up these things rather than taking my medication, I find the medication Valpro has some bad side effects.

I think my last seizure  was a big one becauseI have been a scattered mess since then, I've slept for two days straight now and I have yet to leave the house. I can't think straight so if this doesn't make any sense I hope u understand why. My whole body is aching and my memory is slowly returning.

Anyways I'm almost 25 and I was diagnosed about 2 1/2 years ago.. does anybody else experience sleep related seizures?.. I truly believe if I can get enough sleep I will  get my epiliepsy under control.

Thanks for any of your comments.

Comments

Re: Seizures During Sleep

Submitted by Sage on Sun, 2009-04-26 - 18:04
Your words of wisdom to the young man are thoughtful and well-taken. Your words solicit encouragement instead of preaching. Thank you for giving me some much needed insight to better communicate on this difficult topic with a young person.

Re: Seizures During Sleep

Submitted by tealduck on Tue, 2009-03-03 - 02:31

My seizures are only in my sleep.  I fall asleep and then waking up usually a second before i have a seizure or sometimes  don't wake up at all.  I found the best help for me on top of always taking my seizure meds is that i went to a sleep doctor and was diagnosed with narcolepsy.   I was always so tired and could never get enough sleep.   My new narcolepsy pills are amazing I am a whole different person life is good again.  My last seizure really messed me up my doctor and I tried to slowly go off my meds it was a big mistake.   my seizure was 20mins I could not walk for two days I was so sore.  It took a week for my speech to return and I still do a lot of mental excersizes to get my vocabulary back.  A year later I have mostly recovered from my last seizure but I am still struggling with my speech. 

Teal

My seizures are only in my sleep.  I fall asleep and then waking up usually a second before i have a seizure or sometimes  don't wake up at all.  I found the best help for me on top of always taking my seizure meds is that i went to a sleep doctor and was diagnosed with narcolepsy.   I was always so tired and could never get enough sleep.   My new narcolepsy pills are amazing I am a whole different person life is good again.  My last seizure really messed me up my doctor and I tried to slowly go off my meds it was a big mistake.   my seizure was 20mins I could not walk for two days I was so sore.  It took a week for my speech to return and I still do a lot of mental excersizes to get my vocabulary back.  A year later I have mostly recovered from my last seizure but I am still struggling with my speech. 

Teal

Re: Seizures During Sleep

Submitted by nevertheless on Tue, 2009-03-10 - 07:29

I appear to have siezures in my sleep also, but thank God there is a lack of frequency to them, at least to my knowledge.  I just had a siezure last week Wednsday and it was the first one of that sort in almost 3years. It was the worse one I've experienced.  I am still struggling to remember things and some things are not worth remembering.  This is all so very new to me.

I appear to have siezures in my sleep also, but thank God there is a lack of frequency to them, at least to my knowledge.  I just had a siezure last week Wednsday and it was the first one of that sort in almost 3years. It was the worse one I've experienced.  I am still struggling to remember things and some things are not worth remembering.  This is all so very new to me.

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.