Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Misread EEG/ JME medications
Thu, 02/19/2009 - 14:26Comments
Re: Misread EEG/ JME medications
Submitted by killin on Sun, 2009-04-12 - 15:45
my daughter(11) was just had her first EGG and had a tonic seizue. She had never had one that anyone had seen The doc. wants to start her on Lamictal. We are having a MRI tomorow. ARe their any other test we can do? They say she has JME. I just want to be sure.
i am scared
kk
my daughter(11) was just had her first EGG and had a tonic seizue. She had never had one that anyone had seen The doc. wants to start her on Lamictal. We are having a MRI tomorow. ARe their any other test we can do? They say she has JME. I just want to be sure.
i am scared
kk
Re: Misread EEG/ JME medications
Submitted by dainty on Sun, 2009-04-12 - 20:24
Hi ** Hugs and hang in there** JME one of the "Better" Es to have. IF your daughter only has Grand mals, and IF she is a JME, she SHOULD : ) do very well on Lamictal. My 19 yo son is in the same condition and lamictal a really good drug. Hes on 375 a day. Hes 5' 11 140 lbs.
I know its a scary time but please do what you can to educate yourself on JME aka JANZ syndrome. If you need anything, please just contact me. Both my kids JME.
Be well and good luck*
joan*
My 16 yo daughter posted a video on YouTube. She's discussing her dealing with E. Its not an academy award winner but I thought it funny, sad and I'm just glad she did it. Its called Epilepsy and me
http://www.YouTube.com/watch?v=Pa1wWCzhoi
http://health.groups.yahoo.com/group/JuvenileMyoclonicEpilepsy/
Son lamictal 175 2x 19 Grand Mals - Stable Daughter keppra 750 16 Juvenile myclonic - Not stable yet Both had first issues at 15 - Both JME - gotta love puberty : ) * Both dealing with the nuances that come with it*
Hi ** Hugs and hang in there** JME one of the "Better" Es to have. IF your daughter only has Grand mals, and IF she is a JME, she SHOULD : ) do very well on Lamictal. My 19 yo son is in the same condition and lamictal a really good drug. Hes on 375 a day. Hes 5' 11 140 lbs.
I know its a scary time but please do what you can to educate yourself on JME aka JANZ syndrome. If you need anything, please just contact me. Both my kids JME.
Be well and good luck*
joan*
My 16 yo daughter posted a video on YouTube. She's discussing her dealing with E. Its not an academy award winner but I thought it funny, sad and I'm just glad she did it. Its called Epilepsy and me
http://www.YouTube.com/watch?v=Pa1wWCzhoi
http://health.groups.yahoo.com/group/JuvenileMyoclonicEpilepsy/
Son lamictal 175 2x 19 Grand Mals - Stable Daughter keppra 750 16 Juvenile myclonic - Not stable yet Both had first issues at 15 - Both JME - gotta love puberty : ) * Both dealing with the nuances that come with it*
Re: Misread EEG/ JME medications
Submitted by kncarmichae2 on Sat, 2009-02-21 - 14:14
Thank you very much to both of you! I called my neurologist and he said it was "normal" for me to be having "withdrawl" effects with the keppra..ahhh you just can't win with these medications. They are going to call me back this week and see how I am doing I will ask about the Keppra being a better choice for JME considering they are taking me off the Keppra so I can just be on Lamictal. Sounds like that's not such a good idea. I am sleeping with a CPAP for my sleep apnea and I feel sooooo much better I don't wake up with awful headaches in the morning and I don't end up napping 6-8 hours of my day away.