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Name the BEST pediatric epilepsy dr/hospital - we will go ANYWHERE!

Thu, 09/07/2006 - 19:54
I am searching the world for the best pediatric epilepsy doctor or hospital for my 10 yr old son. We have been to MN, OH, and 3 different hospitals in Chicago,IL. All of them take on my son's case & then ignore us when things dont get any better. They talk of surgery, but dont set up the necessary tests - I call them repeatedly since hes not doing better, hes worse - they increase his medicine, it does nothing, they do nothing. They rarely return my calls - in the meantime, my son suffers, his schooling suffers, his social life suffers. PLEASE - can anyone recommend the best dr out there for him? I will go ANYWHERE - plane, train, automobile - my son has right frontal lobe intractable epilepsy with complex partial seizures. he also suffers from post-ictal psychosis on a regular basis. Thank you for your help.

Comments

Re: Name the BEST pediatric epilepsy dr/hospital - we will go AN

Submitted by alwaysfishin on Thu, 2006-09-07 - 20:08
Did u try contacting the Epilepsy foundation? I know you will find something here from someone... They always do have great offers to share.. Wish you well...

Re: Name the BEST pediatric epilepsy dr/hospital - we will go AN

Submitted by mumtokyle on Thu, 2009-02-12 - 00:40
I know this original post was in 2006 but did u have any luck? I have a 4 yr old that has severe epilepsy (Lennox Gastaut syndrome) and I need to also find the best dr possible. I too will also travel anywhere, but I only have one shot as we live in Australia and I don't have the money to travel to 100 different drs, I don't mind seeing a few but I need the best of the best.

Re: Name the BEST pediatric epilepsy dr/hospital - we will go AN

Submitted by marisa_833 on Thu, 2009-02-12 - 16:33
Donald Shields at UCLA in California was recommended to me for my daughter.  Also I have read the Children's Hospital Of Philadelphia is the best for Pediatric Neurology in the US.  Hope this helps!

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