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Seizures During Sleep

Wed, 02/11/2009 - 22:16

Topic: Living With Epilepsy - Adults

Hi, I'm new to this site. I have most of my seizures in my sleep or in the morning after waking up.. my last one being two days ago. It seems that either illicit drugs, alcohol or lack of sleep bring most of my seizures on, and I'm working on getting them under control by giving up these things rather than taking my medication, I find the medication Valpro has some bad side effects.

I think my last seizure was a big one becauseI have been a scattered mess since then, I've slept for two days straight now and I have yet to leave the house. I can't think straight so if this doesn't make any sense I hope u understand why. My whole body is aching and my memory is slowly returning.

Anyways I'm almost 25 and I was diagnosed about 2 1/2 years ago.. does anybody else experience sleep related seizures?.. I truly believe if I can get enough sleep I will get my epiliepsy under control.

Thanks for any of your comments.

Comments

Re: Seizures During Sleep

Submitted by skillefer on Thu, 2009-02-12 - 14:54

Not trying to scare you Mornin...just need you to see the worst case scenario before you make your decisions, and need you to see how important it is to be honest with your doctor.

Re: Seizures During Sleep

Submitted by Morning Sunshine on Sun, 2009-08-23 - 09:29

I haven't been to the doctor since I was diagnosed, but I am aware of what stopping meds abruptly can do and I reduced the dosage slowly and the condition didnt seem to worsen however unfortunately after two years I am having frequent seizures and have decided to get back on the meds.

I've recently started uni which means late nights and early mornings so I would rather be safe than sorry.

Thanks for the comments

I've recently started uni which means late nights and early mornings so I would rather be safe than sorry.

Thanks for the comments

Re: Seizures During Sleep

Submitted by jerrie on Thu, 2009-08-06 - 23:08

Sheesh. neither have I heard of it, but, it has occured to me! I have these things at night-very rarely during the day-I can`t say I`m happy to read these stories, but it is better to know I am not the only one. I have had many, many tests-I have not been diagnosed with anything -I am 57 years old.The started in 2002. Lately, I wake up gasping for breath sometimes, as my head and neck are violently twisted to one side. Then during the day, sometimes the twisting occurs, but I can use strenth to stop it if I can, and it is better to be awake for that kind of thing. my muscles are sore as is my throat. I have awoken to loudly chattering teeth-cracked teeth and bitten lips-slobber-accidents-all kinds of embarrassing things which believe me no one wnts to hear about! I feel crazy when I try to tell the drs about it. Does anyone know what this is ,really? I have taken some seizure meds in the past as kind of a test to see if I would improve, but theyall made me sick to some degree, and I mean pretty bad. I have headaches, horrible bouts of forgetfulness in which I don`t know what common objects are at all. None of this is constant, but i am getting a little scared to go to sleep(I live alone, which may be a blessing with something like this). I am desperate for information! One dr told me to stop looking into this-not kidding-and none have mentioned that they have heard of nighttime seizures. Any info shared would be so greatly appreciated! Thanks everyone for sharing on these pages-it wasn`t easy for me to write this and i am sure it wasn`t for you either.

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