Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Just really sad about everything

Thu, 09/25/2008 - 19:35

Does anyone ever get really really depressed about it? L8ly ive been getting sad all the time worrying about my future. I think about to many "what ifs" like what if i cant have a kid because my medication will hurt it. Or what if my medication stops working and i switch medications but it really changes me completely. Cuz i have been on several medications and every 1 has there own weird side effects some of which change my personality, what if i am married with kids when that happens and it effects the relationship between me and my husband? What if i have a seizure while im driving and wreck and hurt soembody or worse kill somebody. What if something happens to me were they need to get me on some kind of medication right away but htey cant cuz of the one im already on could interact badly? Theres just so many more. Im considering brain surgury just so then i could get all of these out of my head. Does anyone else ever feel like this?

Comments

Re: Just really sad about everything

Submitted by shmedelle on Mon, 2008-10-27 - 01:22

Chelsea,

I was just talking with my husband about how sad I feel, and I'm still on the verge of tears as I write this, but I wanted to tell you what my husband just said to me. He said, "Michelle, we are lucky that we live in these modern-times where we have great doctors who deal with this sort of thing. Think about what it must have been like a hundred years ago." That is so true. Hey, If the meds don't work, or if the side effects are so bad that your quality of life is seriously compromised, then I would suggsest, from what I have read, to look into seeing if you are a candidate for surgery. From what I have read surgery can be an avenue, and for some, the only avenue to get your life back.

Best, Michelle

Chelsea,

I was just talking with my husband about how sad I feel, and I'm still on the verge of tears as I write this, but I wanted to tell you what my husband just said to me. He said, "Michelle, we are lucky that we live in these modern-times where we have great doctors who deal with this sort of thing. Think about what it must have been like a hundred years ago." That is so true. Hey, If the meds don't work, or if the side effects are so bad that your quality of life is seriously compromised, then I would suggsest, from what I have read, to look into seeing if you are a candidate for surgery. From what I have read surgery can be an avenue, and for some, the only avenue to get your life back.

Best, Michelle

Re: Just really sad about everything

Submitted by Christina518 on Mon, 2008-10-27 - 09:00

Chelsea,

 Im a 26 year old mom who was diagnosed with epilepsy when I was 16. Depression is a common thing for most people who have epilepsy. I have those days where I feel like im just so tired of all these different medications and why did this happen to me. I went to a specialist in Rochester, NY and tried to see if I would be a canidate for the surgery, but unfortunatley my seizures arent in a focalized point. So basically its just hit and miss now with meds. As for having a baby I myself was worried about that I chose to have a C-section instead of natural birth, and I couldnt breastfeed because of the meds i was on but i have a beautiful amazing 6yr old son now. As for driving that always makes me sad I havent driven since i was 16, but its something you learn to accept. Also, for worrying about how your gonna treat your husband or friends and family, if they love you they will understand and always be there for you. I used to get embarassed when Id have a seizure, but my family has always been there to help me out to take care of me after. Trust me, when your with the ones you love, things dont have to seem so hopeless. Take care of yourself Chelsea, and I wish you the best of luck!

Chelsea,

 Im a 26 year old mom who was diagnosed with epilepsy when I was 16. Depression is a common thing for most people who have epilepsy. I have those days where I feel like im just so tired of all these different medications and why did this happen to me. I went to a specialist in Rochester, NY and tried to see if I would be a canidate for the surgery, but unfortunatley my seizures arent in a focalized point. So basically its just hit and miss now with meds. As for having a baby I myself was worried about that I chose to have a C-section instead of natural birth, and I couldnt breastfeed because of the meds i was on but i have a beautiful amazing 6yr old son now. As for driving that always makes me sad I havent driven since i was 16, but its something you learn to accept. Also, for worrying about how your gonna treat your husband or friends and family, if they love you they will understand and always be there for you. I used to get embarassed when Id have a seizure, but my family has always been there to help me out to take care of me after. Trust me, when your with the ones you love, things dont have to seem so hopeless. Take care of yourself Chelsea, and I wish you the best of luck!

Re: Just really sad about everything

Submitted by Shenoah on Tue, 2009-02-10 - 09:45

  Hello, I am Shenoah. (16)

      Having E can make you worry a lot, but don't. Life is full of ups and downs, regardless of the fact that you have E. Things can change, and will. You shouldn't worry about "what if" becasue if you spend your time with "what if" you will never "do". My brother (Joe, 19) has had E for a year and a half, and he gets depressed and worried too, one thing you SHOULDN'T do though, is spend all your time thinking about it. It could actually cause you to have a SZ! There are a lot of things you can do with E.    If you settle down and start a family, then your man will just have to love you and understand you enough to know, that it is the medication, not you, and it is what needs to be done to protect you. If he loves you, EVERYTHING WILL BE OKAY.

    Don't get sad at looking into your future, look at E as an oppurtunity to share your story, life, and tribulations with others, therefor helping them. You can do a lot for people just like you and my brother.

 

Shenoah Brooke

  Hello, I am Shenoah. (16)

      Having E can make you worry a lot, but don't. Life is full of ups and downs, regardless of the fact that you have E. Things can change, and will. You shouldn't worry about "what if" becasue if you spend your time with "what if" you will never "do". My brother (Joe, 19) has had E for a year and a half, and he gets depressed and worried too, one thing you SHOULDN'T do though, is spend all your time thinking about it. It could actually cause you to have a SZ! There are a lot of things you can do with E.    If you settle down and start a family, then your man will just have to love you and understand you enough to know, that it is the medication, not you, and it is what needs to be done to protect you. If he loves you, EVERYTHING WILL BE OKAY.

    Don't get sad at looking into your future, look at E as an oppurtunity to share your story, life, and tribulations with others, therefor helping them. You can do a lot for people just like you and my brother.

 

Shenoah Brooke

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.