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Pyridoxine Dependent Epilepsy
Thu, 11/01/2007 - 08:44Comments
Re: Pyridoxine Dependent Epilepsy
Submitted by leighko on Sat, 2009-02-07 - 21:09
My son started having seizures when he was five days old. The Doctors at Arkansas Children's Hospital diagnosed him with Pyridoxine dependent epilepsy. He spent his first month at the hospital, but is now at home doing well so far. I have not been able to find a whole lot of information on this until I came upon this site. If you don't mind me asking, what kind of set backs or delays did you have. My son has shown none so far, but he is only two and a half month's old.
Leigh
My son started having seizures when he was five days old. The Doctors at Arkansas Children's Hospital diagnosed him with Pyridoxine dependent epilepsy. He spent his first month at the hospital, but is now at home doing well so far. I have not been able to find a whole lot of information on this until I came upon this site. If you don't mind me asking, what kind of set backs or delays did you have. My son has shown none so far, but he is only two and a half month's old.
Leigh
Re: Pyridoxine Dependent Epilepsy
Submitted by CHARISSE on Mon, 2013-05-06 - 13:04
Hi,
My daughter now 2 months has been diagnosed with pyridoxal phosphate dependent epilepsy.
We are giving her pyridoxal phosphate 25mg four times a day. I was just curious as to how your kid is doing now. What are the developmental issues and how it was resolved.
Thank you!
Hi,
My daughter now 2 months has been diagnosed with pyridoxal phosphate dependent epilepsy.
We are giving her pyridoxal phosphate 25mg four times a day. I was just curious as to how your kid is doing now. What are the developmental issues and how it was resolved.
Thank you!