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Tracking Seizures
Fri, 01/23/2009 - 14:17Hello,
I was recently diagnosed with TLE, and am learning more and more about these kinds of seizures. My main symptom which lead to testing for epilepsy was memory issues. I would go through "spurts" where I'd have terrible short term memory, and sometimes I'd have complete gaps in my memory where I was awake but felt like I wasn't present in my life at that moment.
Anyway, several tests later, I got my dx and am now on Lamictal. Right now I can't drive, and my neuro has requested that I keep a journal of my seizures. But this is the problem: I am not aware of, nor do I remember my seizures. Even my neuro admits that I probably have auras or warnings (because I have a limited history of odd feelings in the stomach and smells that didn't exist), but that I likely don't even remember those let alone the seizure itself.
So I've been keeping a journal and writing down EVERYTHING that I thought was strange. Including pain, tingling, confusion (because these are all symptoms that I originally presented with), but my neuro seems only interested in my memory problems (my neuro is a whole different issue). But I don't remember not remembering! So I'm wondering if anyone out there has any tips or advice for keeping track of this kind of seizure.
Obviously I'd like to drive again (and I live in NH so the restriction is 1 year after last seizure), but more than that I'd like ensure my safety and the safety of those around me. How can I do this when I don't even know that I'm having seizures?
Please share your thoughts with me!
Re: Tracking Seizures
Submitted by curiousnikki on Thu, 2009-01-29 - 15:05
I'm desperate! If anyone has ANY suggestions at all, I'd love to hear them.