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Does Anyone ever want to have seizures??

Tue, 02/13/2007 - 16:13
I'm newly diagnosed with epilepsy. Its Februrary, and I first started having seizures was in June. I have complex partial seizures, and haven't been able to be seizure free for more than a month. I've tried Lamictal, but I had an allergic reaction. Then I tried Keppra which made me fret often, but controls the seizures until I skip a single dose. Then I'll have a cluster for a week, and I have around 4 a day. I tried dual therapy with topamax which was a horrible mistake. Im on 4000 miligrams a day of Keppra then trying topamax made me completely loopy. I felt like I was on drugs and couldnt remember anything. And it gave me acne so I got off of that quickly! Heres the real question. Does anyone ever want to have seizures? It will be four weeks tomorrow since I have had a seizure, but I feel like there is so much pressure that I just need to have a seizure to release some tension. I don't have the feel good type of seizures. It hurts physically and mentally but I still find myself feeling the need to have one. Does this happen to anyone else?

Comments

Re: Does Anyone ever want to have seizures??

Submitted by shaff on Thu, 2009-01-22 - 18:22

I had partial seizures daily for the last 4 months and was miserable until I had a grand mal last week and after a few days of physically and mentally recovering from it I haven't had a partial seizure since and feel like i am not in hell anymore.  I hate grand mals but the doc said it raised my threshhold and resets electrical activity, hope it stays this way adn if it's true hope i don't have to wait for a big grand mal for months to get the daily clusters of partial seizures to go away.  I am afraid my luck is running out with injuries during grand mals, use to be just stiches and black eyes until this last grand mal shattered my tailbone, i will take this shattered tailbone over daily partials for months any day.

bubster

I had partial seizures daily for the last 4 months and was miserable until I had a grand mal last week and after a few days of physically and mentally recovering from it I haven't had a partial seizure since and feel like i am not in hell anymore.  I hate grand mals but the doc said it raised my threshhold and resets electrical activity, hope it stays this way adn if it's true hope i don't have to wait for a big grand mal for months to get the daily clusters of partial seizures to go away.  I am afraid my luck is running out with injuries during grand mals, use to be just stiches and black eyes until this last grand mal shattered my tailbone, i will take this shattered tailbone over daily partials for months any day.

bubster

Re: Does Anyone ever want to have seizures??

Submitted by rikk on Thu, 2009-01-22 - 19:22
for me it is just like waiting for the other shoe to drop.  you wait, you wait, you wait.  tthen it happens, and i am okay for about 5 minutes then the cycle starts again.  what i ended up doing was to let it go.  i don't fell the headaches, or pain from the injuries.  i know they are there.  it is like the cartoon.  i don't have a seizure problem, i seize, i fall down, i break something, i get back yp.  see no problem.  what you are going throuth is hell, i know, like a lot of people here.  you are not alone.  hope it helps.  rikk

Re: Does Anyone ever want to have seizures??

Submitted by KirstyT on Tue, 2007-02-13 - 16:54
i often feel better and more refreshed after having a fit, i move around in a daze before a fit then i have a brain storm and boom i feel so much better and can think straight! its good to read someone else feels the same! i hate being on drugs i feel doped up all the time like a zombie im on keppra at the moment but considering coming off it as side effects are dreadful. its a toss up between zombie and no fits or fits feel normal but can drive aand feeling normal wins time and again!

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