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Seizures and one-sided weakness
Fri, 01/02/2009 - 08:19Out of idle curiosity, has anyone had this? I'll notice some mornings that my right side will be weak when I wake up. Not profoundly so, but enough to get my attention and make walking a bit interesting.
While not formally dx'd yet, I'm pretty sure I've been having nocturnal seizures (simple partials) since April of last year. However, my seizures changed about 2 months ago to include what I think are complex partials and that's when the right-sided weakness started. I'm concerned about having seizures in my sleep that I don't remember and wondering if the right-sided weakness could be related.
I have an appt with an Epi in 2 weeks, but was hoping to gather a bit of info prior to that regarding this. I know you guys aren't docs, but any advice or experience in this dept would be greatly appreciated.
Thanks!
Comments
Re: Seizures and one-sided weakness
Submitted by confuzzed on Mon, 2009-01-05 - 07:34
So glad to hear I'm not the only one. Well, not glad you go through this too. You know what I mean.
I've started keeping track of this info. Every little thing. Feel like I'm micromanaging my life, but it's a necessary evil, I guess. Hopefully, there'll be enough info accumulated by the 15th to help the Epi make a dx.
Occasionally will have trouble speaking, more often will have right-sided weakness with or without the 'stupids'. On 'stupid' days, will have difficulty doing even the simplest tasks for a few hours after waking. It gets better as the day goes on, but the weakness can sometimes last for a day or two.
Thanks!
So glad to hear I'm not the only one. Well, not glad you go through this too. You know what I mean.
I've started keeping track of this info. Every little thing. Feel like I'm micromanaging my life, but it's a necessary evil, I guess. Hopefully, there'll be enough info accumulated by the 15th to help the Epi make a dx.
Occasionally will have trouble speaking, more often will have right-sided weakness with or without the 'stupids'. On 'stupid' days, will have difficulty doing even the simplest tasks for a few hours after waking. It gets better as the day goes on, but the weakness can sometimes last for a day or two.
Thanks!
Re: Seizures and one-sided weakness
Submitted by rikk on Mon, 2009-01-05 - 09:33
i thought i was going nuts when it first started a happening. others having the same thing made me feel better as well. once you get the base data down, as far as the variables, the amount of documemtation lessons. then it is just changes. maintaining a daily log, for me has been a good thing. it reminds me when i forget things. it also help, with the daily acceptance of the seizures. it was a very effective tool when disability was the necessary option. daily log, makes a complete record.
anytime you have difficulty, do the shout out. "3hours" has a great list of reference information. our personal experiences are similar. hope it helps. rikk
i thought i was going nuts when it first started a happening. others having the same thing made me feel better as well. once you get the base data down, as far as the variables, the amount of documemtation lessons. then it is just changes. maintaining a daily log, for me has been a good thing. it reminds me when i forget things. it also help, with the daily acceptance of the seizures. it was a very effective tool when disability was the necessary option. daily log, makes a complete record.
anytime you have difficulty, do the shout out. "3hours" has a great list of reference information. our personal experiences are similar. hope it helps. rikk
Re: Seizures and one-sided weakness
Submitted by rikk on Fri, 2009-01-02 - 09:21
first yes it has happened, and happens to me. usually connected with nocturnal seizure activity. keep a record of the days that it happens, also make note of the condition of your bed. no seizure, i pull the corner back up. seizures it is a tornado. the numbness is usually worse in the leg, but is still present in the arm and maybe the face, trouble speaking? most people can only remember about half of the seizures they have. this is particularly true with people with multiple types of seizures.
see if you can find a coorelation between activity level, fatigue to the nocturnal seizure activity. keep a daily journal of all activity at least for a while, it will allow a better idea of the effort level daily. include what you eat and how much. some foods can have effects on seizures, and seizure medications. hope it helps. rikk
first yes it has happened, and happens to me. usually connected with nocturnal seizure activity. keep a record of the days that it happens, also make note of the condition of your bed. no seizure, i pull the corner back up. seizures it is a tornado. the numbness is usually worse in the leg, but is still present in the arm and maybe the face, trouble speaking? most people can only remember about half of the seizures they have. this is particularly true with people with multiple types of seizures.
see if you can find a coorelation between activity level, fatigue to the nocturnal seizure activity. keep a daily journal of all activity at least for a while, it will allow a better idea of the effort level daily. include what you eat and how much. some foods can have effects on seizures, and seizure medications. hope it helps. rikk