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Nocturnal Seizures

Fri, 04/11/2008 - 15:10

Hey

I'm new to this forum and have seen a couple of posts where people have experienced some seizures similar to mine.

Has anybody had or heard of seizures that occur when they are trying to wake up, but can't?

It seems like I will have a mild hallucination and I try to wake up, but all of a sudden I can't lift my head up to wake up. 

I can feel myself shaking violently, especially in my head and neck.  My fiance watches them happen and gets freaked out.

I just had one about an hour ago while sleeping on my left side, I became extremely short of breath and my chest was hurting at the same

time.  I've never been to the doctor, but have an appointment for April 21st.  Any ideas on what these are?

It seems to happen alot when I am really tired, sometimes when I am just falling asleep.  They started happening about 4 years ago,

randomly.  They happened once every couple of months and progressed to now occur almost everyday.  

Never happens during the day though.  I am not on any medications, I am in RN BSN nursing school so I do get limited sleep.

Thanks for your help!

 

Comments

Re: Nocturnal Seizures

Submitted by ali oli on Sat, 2008-12-13 - 14:42

first of all can i say get to a doctor! i can't believe you have put up with this for 4 years (you poor luv)

i have what sounds like the same as what you're having.i get twitches when i'm falling asleep but never  in the day.i told my dr about them & he said they are siezures.i never call them that because i'm concious when they happen & they don't last long so i just call them twitches.

if you want to talk about any of this don't hessitate to get in touch. i'm just as eager to find someone with simalarities to mine. Alex :0)

first of all can i say get to a doctor! i can't believe you have put up with this for 4 years (you poor luv)

i have what sounds like the same as what you're having.i get twitches when i'm falling asleep but never  in the day.i told my dr about them & he said they are siezures.i never call them that because i'm concious when they happen & they don't last long so i just call them twitches.

if you want to talk about any of this don't hessitate to get in touch. i'm just as eager to find someone with simalarities to mine. Alex :0)

Re: Nocturnal Seizures

Submitted by A whole new world on Fri, 2008-12-19 - 21:07
I read that you were on your left side and it brought tears to my eyes. I am not under the care of a physician. I have been paying close attention to my body. I have apx 1-2 Nocturnal Seizures a month. Always when I sleep on my left side. I drink at least a glass of wine a day and noticed that I have a seizure when I don't. It is so frustrating to have these things and have no real memory of them. I wake myself up when I feel this odd feeling in my stomach. My 8 yr old son says when I claim to feel myself waking up, its actually a seizure. These things freak my kids out. I have changed my diet to include plenty of Omega3. I woke up the other day really sore and just realized today that I probably had a seizure. No sore tongue which in itself is enough for me. Only mild twitching on the right side. My ex is a neurologist and thinks Im crazy for not seeing a dr but did tell me I made sense and that the sleeping on the left side should be discussed in great detail to the dr I do decide to see. I started having these seizures almost 2yrs ago. I can honestly say they have slowed down. I used to have them while awake. I must say that I am afraid to fall asleep some nights

Re: Nocturnal Seizures

Submitted by ali oli on Sat, 2008-12-20 - 05:29
thats weird you say about your left side.i always sleep on my right side & when i can't get comfy i turn on my left side then i have a seizure.i used to dred going to bed but since mon this week i'v started havin day time seizures.just out the blue.everything has gone scatty since the dr changed my meds on 2nd dec. Alex :0)

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