Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Does ANYONE like being on Keppra?
Thu, 09/14/2006 - 16:02Topic: Medication Issues
Okay, so I know no one really likes being on any medication, but I am just wondering, does anyone LIKE Keppra?
I hate Keppra. I hate the way it makes me feel. I'm always tired and grouchy and fidgety. I can't see straight most of the time and my already short-fuse is way way shorter.
Has anyone been on Keppra and NOT had bad side effects?
Because for the number of people, it seems like most people I've talked to DON'T like it.
Comments
Re: Does ANYONE like being on Keppra?
Submitted by 3Hours2Live on Sat, 2008-11-29 - 21:54
discussion/964617 near bottom of forum page 11/29/2008 6:53 PM PST
caregivers_need_hugs2
Diane,
Sorry, but the website is posting my reply everywhere but where I want it!
Yes, it gives me a spark of hope that it isn't the Keppra that is the EVIL DRUG, but
maybe the interaction with other medicines that makes Keppra so emotionally
aggravating.
I hope Keppra turns out to be a "magic bullet" for me as I stop taking Dilantin over
osteoporosis, and return to Keppra for its fast acting effects whenever I have warning
of a gran mal.
Dilantin and Keppra mixes made me irritable to apathetic! ("Growly snapping!" to "What's
the use of anything?").
Since I haven't had any luck with AEDs controlling my partial seizures, I'm going to
just accept them for now and focus on alleviating my gran mals as much as possible
with Keppra, and see if I can balance everything for the best with minimal side-effects.
With all the doom and gloom otherwise reported about Keppra, Thanks for your encouraging
report on Keppra having a ray of bright light!
Re: Does ANYONE like being on Keppra?
Submitted by 3Hours2Live on Sat, 2008-11-29 - 20:20
**
Re: Does ANYONE like being on Keppra?
Submitted by tonialpha on Sat, 2008-11-29 - 14:17
I was on Tegretol as a test patient a long time ago! I also love to run too. I started to have problems about 5 years ago w./ sodium and calcium problems. I slipped while running down a hill and broke my right fibula and tibia. The ortho. said I had Osteoporosis. I take a medication for the Osteoporosis. He said you are young to have it and you are athletic. He did a study on the rest of my body and I had other parts of my body that were weak too. I am taking calcium w/ vit. D and Magesium too. I also started not being able to clot fast enough. I told the Epileptologist. We need to change. Tegretol is a great drug. He put me on Keppra. It was like sugar water. He put me on 3750 mg along w./ Zonegran. 300 mg. I started to go back running 5 K and I was fine but he noted I was seizing in his office. He said I want to put you in a study similar to Keppra it's Breveracetam. I'm on the open study. I suddenly cannot run it has affecting my muscles. He said that should go away. I can only go a mile. I have frozen shoulder on both shoulders. My ortho. said you are one of my most healthiest patients. Brother! The meds. have decreased my seizures. I will wait one more month. I use the treadmill. He gave me shots for the shoulders which I have been exercising and he said I was like any other athlete trying to fix it myself. I ice it or heat when I have pain. Thanks for letting me write this.
I was on Tegretol as a test patient a long time ago! I also love to run too. I started to have problems about 5 years ago w./ sodium and calcium problems. I slipped while running down a hill and broke my right fibula and tibia. The ortho. said I had Osteoporosis. I take a medication for the Osteoporosis. He said you are young to have it and you are athletic. He did a study on the rest of my body and I had other parts of my body that were weak too. I am taking calcium w/ vit. D and Magesium too. I also started not being able to clot fast enough. I told the Epileptologist. We need to change. Tegretol is a great drug. He put me on Keppra. It was like sugar water. He put me on 3750 mg along w./ Zonegran. 300 mg. I started to go back running 5 K and I was fine but he noted I was seizing in his office. He said I want to put you in a study similar to Keppra it's Breveracetam. I'm on the open study. I suddenly cannot run it has affecting my muscles. He said that should go away. I can only go a mile. I have frozen shoulder on both shoulders. My ortho. said you are one of my most healthiest patients. Brother! The meds. have decreased my seizures. I will wait one more month. I use the treadmill. He gave me shots for the shoulders which I have been exercising and he said I was like any other athlete trying to fix it myself. I ice it or heat when I have pain. Thanks for letting me write this.